Just diagnosed

By marypen211

Last Updated:

1 min read

I have noticed a tremor for about a year. More recently it has become noticeable to others. The Movement center at RI Hospital diagnosed Parkinson’s. I’m a little shocked, but also concerned because the doc said it was early and mild, but didn’t offer any meds or offer anything except to go on the Micaelas J Fox web site. I thought treating something early was key?

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April.Sluder Member

Hi <inline-mention user-id="3084403" username="marypen211" class="bp-suggestions-mention"/> , it really all depends on your symptoms as treatment mostly focuses on alleviating those symptoms. You could follow up with the doctor that diagnosed you with questions or you could get a second opinion. Here's an article you may find helpful. <a href='https://parkinsonsdisease.net/treatment/goals' target='_blank'>https://parkinsonsdisease.net/treatment/goals/</a> Best wishes, April - <a href='https://parkinsonsdisease.net' target='_blank'>ParkinsonsDisease.net</a> Team
1. marypen211 Member
 
 Yes, I am going to Boston for a second opinion. It is mild, but it feels as if we are just waiting for it to get worse before treating and I would rather be proactive.
Lorraine Wilson Member

I read your story with interest and am glad you commented that you are going for a second opinion. I hope this is with a movement disorder specialist. You mention only tremor. Please exercise if you have not already started. Self-educate from trustworthy sites. I highly recommend the Every Victory Counts manual available free from the Davis Phinney Foundation website (mailed free in the US, free download to all, now available in audio format, too). Yes - good info on the MJ Fox site and the Parkinson's Foundation site. Write a list of questions for your next visit. ~Lorraine, <a href='https://parkinsonsdisease.net' target='_blank'>parkinsonsdisease.net</a> moderator
marypen211 Member

Yes, I am going to a neurologist at Brigham and Women’s for a second opinion. I went to RI Hospital Movement Disorder clinic first. I only have a tremor in my left hand but it is getting worse. Nothing else ( except constipation) I walk daily
Merrys Member

I was also diagnosed after having a mild tremor for about a year. I am on carbadopa/levadopa 3 x a day. It has helped me.