Healthcare Obstacles & the LGBTQ+ Community...Editor’s Note: LGBTQ+ stands for people who identify as lesbian, gay, bisexual, transgender, or queer. To learn more about gender identity, check out the interactive website The Genderbread Person. Have...Reactions0reactionsComments1 comments
Where do you turn when you feel that you have no support?...Where do you turn when you feel that you have no support from family and you feel that you are close to rock bottom?...Reactions0reactionsComments4 replies
Playing Oliver Sacks with my Parkinson's...Being both a doctor and a patient simultaneously is a double-edged experience. You're much more aware of the medical understanding and able to interpret the content of new findings. I...Reactions0reactionsComments11 comments
Think positive, let people know about your condition...I was at a terrible low ebb when diagnosed, however after help from my specialist nurse I began to see my situation in a new light. I tell people my...Reactions0reactionsComments2 comments
The Power of Language...A rose by any other name would smell as sweet or, Parkinson’s by any other name would still stink. The power of language is certain; words can either bolster or...Reactions0reactionsComments2 comments
Secrets, Fears, and Vulnerabilities with Parkinson's: Part 2...In late winter / early spring of 2018, after consecutive bouts of respiratory distress that brought on physicians’ concerns of aspiration pneumonia, I quietly reached a point of “no more...Reactions0reactionsComments0 comments
Pushing Past the Noise...There is an ear-piercing noise that occurs when you are living with a chronic illness, especially Parkinson’s disease (PD). This sound inescapably overwhelms your soul, consumes and stifles your creativity...Reactions0reactionsComments1 comments
The Variability of Parkinson’s: What to Expect and How to Manage Symptoms...Parkinson’s disease (PD) is a progressive disease of the brain. In healthy brains, cells called neurons make a chemical called dopamine. Dopamine helps coordinate movement. People with PD have less...Reactions0reactionsComments4 comments
Leg Cramps in Hamstrings are Debilitating...My husband was diagnosed with PD 10 years ago. In the last year, he has gotten cramps in his legs about 5 times a day. We do not know if...Reactions0reactionsComments7 comments
Is Sertraline okay to use with Sinemet?...My husband has had catastrophic side effects to Trazodone antidepressant and is about to wean off them, transferring to Sertraline instead, but we're nervous after such a bad experience....Reactions0reactionsComments2 replies
The Language of Parkinson's: What To Say vs. What Not To Say...When my Nan turned 90, I wrote in her card that I was grateful for inheriting her stubborn streak. Some of you might be thinking that’s a pretty insulting thing...Reactions0reactionsComments1 comments
Getting the Most From Your Parkinson's Medication...Most of us who live with a chronic illness like Parkinson’s know firsthand what a struggle it is to find the right combination of medication. It seems once we do...Reactions0reactionsComments0 comments
Nordic pole walking for pd....With pd I feel like Im in the fight of my life! So I fight back as hard as I can every day in every way! Helping others is just...Reactions0reactionsComments2 repliesTreatment
Voxxlife...Has anybody heard of a company called Voxxlife who make socks and shoe inserts which are supposed to ease balance problems for Parkinson's sufferers?...Reactions0reactionsComments2 replies
Community Views Around Staying Positive: What Parkinson’s Cannot Take From Me...Sadness, anger, fear. When someone hears for the first time that they have Parkinson’s, it is natural to feel down. Any disease that affects quality of life could easily lead...Reactions0reactionsComments0 comments
Providing Spousal Support When Your Loved One Has Parkinson's...I have this idea - a conspiracy theory really - that in the 60s and the 70s, infomercials were put out telling people, nay, warning people, about the terrible effects...Reactions0reactionsComments4 comments
Feeling a Loss of Purpose With Parkinson's Disease...As I was flying back to New York from visiting my parents in Dallas, I watched Netflix’s The Crown. The show, while painstakingly dull to some, provides serious insight into...Reactions0reactionsComments3 comments
What Scares Me...I've been having increasing difficulty getting out of bed at night and just generally having trouble moving in bed. I have a bed cane and that helps, but I feel...Reactions0reactionsComments2 comments
Interview with Dr. Ray Dorsey: Ending Parkinson's Disease...Dr. Ray Dorsey is the David M. Levy Professor of Neurology and Director of the Center for Health + Technology at the University of Rochester. Through creative use of technology...Reactions0reactionsComments11 comments
Common Questions From Caregivers About Parkinson's...Taking on the role of caregiver for anyone can be daunting, especially when it is someone you love. This is true, whether you chose the role or just had it...Reactions0reactionsComments0 comments
