Carer Needing to Offload...Hello - I joined today to offload really in a safe environment and maybe get some tips/pointers. I care for my husband who has had PD for 20yrs, he is...reactions16repliesCaregivers & Care Partners
Denial...New there. Still in denial and scared. Have all the symptoms. Need support....reactions5replies
caring for defiant mom...My family has been struggling with my mom the past few months. She was diagnosed with early-onset pd 20 years ago. Over the past year...especially the last 5 months, she's...reactions5repliesCaregivers & Care Partners
John Bennett...John Bennett age 63 became a member of the Parkinson’s community when he was diagnosed in 2010. In 2016 he retired after spending 34 years teaching as a professor of...
Parkinson’s Disease and Pelvic Floor Dysfunction...Parkinson’s disease (PD) can affect many aspects of the body, certainly not to leave out the pelvic floor. What’s the pelvic floor, you ask? It is a group of muscles...reactions3comments
Tips to Better Navigate Raising Children in the Midst of Illness...Establishing a conversation regarding Parkinson's disease (PD) is an important part of parenting in the midst of illness. My conversations with my daughter have been evolving over time. As she...reactionscomments
Using DBT to Cope with Caregiver Stress: Mindfulness...When coping with depression associated with Parkinson’s disease or caregiving stress, there are sometimes days when one would like assistance with dealing with the ups and downs. While some therapies...reactions1comment
Guided Meditation...Meditation has been shown to have multiple benefits on a person’s health, both physical and emotional. Regular meditation can help relieve pain, increase positive emotions, and improve memory and concentration...reactionscomments
Diagnosed 3 years ago...I’ve had hand tremors for many years and it was pretty well controlled with mild medication. I started having more symptoms I was told nothing was wrong. Finally I went...reactions1comment
In America: What’s That?...The In American survey is now closed. A Parkinson's diagnosis is a shock, but what can make it more difficult is the lack of information available for patients and their...reactionscomments
Real Optimism for Parkinson's Through Technological Innovations...Let me just say it: I love technology! Technology makes us who we are. It advances us as a species. From fire and the wheel to Deep Brain Stimulation and...reactionscomments
Diagnosed at my age of 27...Hello. I am 37 years old and this year is the 11th with Parkinson's disease. With medicine, I look like a quite normal person. I enjoy cycling which has been...reactions1comment
Multiple System Atrophy (MSA) vs. Parkinson's: What's the Difference?...Both multiple system atrophy (MSA) and Parkinson’s disease are degenerative diseases of the nervous system that affect movement and worsen over time. Their early signs and symptoms are generally quite...reactions9comments
Monitoring Our Self-Care: Part Two...Technology, medical discoveries, and overall innovations have made our lives better, healthier, and more productive, but has it reduced our frustration level? Are we happier in the 21st century than our...reactions2comments
It's 3AM, Can We Talk? (Part One)...It is 3:15 a.m., again...and I am finding it difficult to fall back to sleep for yet another night. So, just in case the love of your life also has Parkinson’s...reactionscomments
Don't Lose Sleep as a Parkinson's Caregiver: Part One...This is Part One in a series of three articles that focuses on things you can do to prioritize and achieve sleep as a caregiver. If you care for a...reactions5comments
62 and Shattered...Hi I had an three year long ordeal of being what I thought was happily married only to find out that my husband was engaged in an ongoing relationship with...reactions1comment
Breathing Exercises to Reduce Stress & Anxiety...Focusing on the breath is a technique used to help calm the mind and reduce stress and anxiety. There are many forms of breathing exercises. In this video, renowned naturopath...reactions3comments
How to tell how advanced?...My wife was diagnosed in 2018 but more likely has had PD for ten to twenty years misdiagnosed as everything else. They now have her on Sinemet 25-100 7xday, Sinemet...reactions3replies
