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hubby

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  1. "Let down .
    After five years of being told I have parkinsons my condition has been changed to parkinsons +
    Does anybody have any experience of this condition?
    I'm 61 years old and I think this may be a game changer .
    Progressive Supranuclear paralysis is the technical name.
    Does anybody have any experience of this?"

    1. Lorraine Wilson's avatar image

      Lorraine Wilson

      Thank you for sharing. I have known several people diagnosed with a Parkinson's plus syndrome. One was a relative with PSP. I do not know for certain, but I am pretty sure his visual problems were wheel gloved to using a wheelchair. He didn't respond to carbidopa-levodopa so it was stopped. I don't know that your path will bear any resemblance to his. A friend of mine is an occupational therapist with Parkinson's experience (her dad and some patients) and I've learned from her that various therapies help, especially when started as needed. That's all I know. I hope you receive more suggestions/help. Kind regards, Lorraine, Parkinsonsdisease.net.com

    2. hubby's avatar image

      hubby

      Thanks Lorraine 😊. Hàs anybody else got anything?

    3. hubby's avatar image

      hubby

      only me then??

    4. Suzanne Troy's avatar image

      Suzanne Troy

      Hello, I'm not positive this is the same type but I took a bet on it to share an article we had on our site. I hope it's helpful. Let us know.
      https://parkinsonsdisease.net/answers/progressive-supranuclear-palsy-psp

      All the best, Suzanne Troy, fellow moderator for ParkinsonsDisease.net

  2. "I'm good "

  3. "I had a bit of a meltdown yesterday. Really unusual for me. Always been cool and calm. This illness is changing me. I'm full of dread and always thinking the worst. Very dark at times. "

    1. Chris H.'s avatar image

      Chris H.

      I'm so sorry to hear that, @hubby. The fear that comes with PD is very understandable. If you want to talk about what happened, we're hear to listen. In the meantime, I thought I'd share an article with you that offers some practical tips on addressing some fears of PD: https://parkinsonsdisease.net/living/fears-parkinsons/. I hope this helps. Take care. - Chris, ParkinsonsDisease.net Team

  4. "Apprehensive "

    1. Chris H.'s avatar image

      Chris H.

      Thanks for sharing, @hubby. Is there anything in particular you're apprehensive about? - Chris, ParkinsonsDisease.net Team

    2. hubby's avatar image

      hubby

      My life Chris

    3. Chris H.'s avatar image

      Chris H.

      I can certainly understand that, @hubby. Please let us know if there's any information we can help you find! - Chris, ParkinsonsDisease.net Team