Fight or accept or both?...Finally diagnosed in July 2018. Got severely depressed, suicidal and all that fun stuff. Left an abusive marriage a few months before and left the state to live with my...reactions3replies
Quotes on Hope, Positivity, Loving Others, and Living with Parkinson’s...The past few months have been both rewarding and difficult. These difficult times have changed all of us, directly or indirectly. For personal reasons, I have been writing quotes on...reactions2comments
The Repo Man Called For You: His Name Was 'Mr Parkinson'...I’m sorry that I missed you. I’m sorry you were late, I’ll catch you when you’re next in view, Or just about to emigrate, Yes, I’m the promised man, I’m...reactions1comment
Restarting My Self-Care During Quarantine...For the last few months, I have thought about all my fellow care partners often. I'm often wondering how caregivers are coping with these difficult times, being isolated, schedules turned...reactionscomments
Six Tips for Managing Parkinson's "Off Time"...The medications developed to treat Parkinson’s disease (PD) can help manage the symptoms, including tremor or shaking, rigidity, impaired balance, and slowness of movement. However, many people with PD experience...reactions45comments
Infographic: Pain Management Treatment and Care...In September of 2019, Health Union (the parent company of ParkinsonsDisease.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...reactions2comments
Impulse control...Has anyone encountered someone who was never inappropriate before having Parkinson's disease for 10 years but has become obsessed with sexual thoughts and disturbing comments?...reactions7replies
FDA Approves App to Personalize Parkinson’s Disease Therapy via Mobile Device...The U.S. Food and Drug Administration (FDA) has approved the use of Abbott’s Patient Controller app on personal Apple smartphone devices. The app is designed to coordinate therapies that use...reactions1comment
I used to have Parkinson's disease now I don't...cant go into story at the moment But please please Get A Scan it is the only definitive way to Confirm diagnosis.I still have a tremor But its not caused...reactions16replies
The New Era of Telehealth & Telemedicine Visits: Part 2...To read more about preparing for our telehealth visit with the neurologist, read part one of this article series. The medical office sent an email to Karl with a Zoom...reactions5comments
Dealing with Tremors: Using Meds, Moves, & Humor to Cope...My guess is that most of you reading this know how fictional character James Bond likes his martini prepared. The phrase, “shaken, not stirred,” is as familiar as the way...reactions21comments
Emotional drain...Hello, I joined today because I feel quite lost and very guilty. My mom was diagnosed with PD 10 years ago. (she is 72 now) She also had 2 spinal...reactions4repliesCaregivers & Care Partners
Any voice treatment or ideas to communicate?...My dad has had Parkinson's for many years. In the last 1-2 years, it's left him unable to walk. Now in the last 3-6 months, his voice is nearly gone...reactions3replies
Urinary Incontinence in People with Parkinson’s Disease: Part 1...“Incontinence Hotline...Can you please hold?" Lately, I have seen television ads for bladder control medications that are proudly showing some woman roaming around with a nagging bladder always bugging her...reactions4comments
Call Me Mr. Parkinson: The Naked Truth, Nothing Else...The real, underlying problem Parkinson's folk have is that they comprehend there is no cure for this monstrous, unassailable and undignified infliction, yet no one - or very few people...reactions6comments
7 Less Common Misdiagnoses of Parkinson’s Disease...Anyone with Parkinson’s disease can tell you that the road to diagnosis is anything but direct. Too often, it comes down to a bit of luck – as in, finding...reactions2comments
Does anyone else experience extreme leg pain?...I am new to this site...I have been diagnosed with PD. Going to sleep at night is tantamount to climbing Mt. Everest...I have tried taking Tramadol but do not like...reactions13replies
Should I be Concerned?...I am 48 years old, and have had intermittent issues with what is likely essential tremor since my early 20s. But over the past year or two my right hand...reactions2replies
The New Era of Telehealth & Telemedicine Visits: Part 1...We recently participated in a telehealth visit with Karl’s neurologist. Rarely have we been excited and filled with anticipation for a neurology appointment. Since we both grew up during the...reactions6comments
Diagnosed in 2018...It was a long road to a final diagnosis. My husband started out with a tremor in one hand and then the other. After Botox Injections in fingers hand and...reactions3comments
