Diagnosed in 2018
It was a long road to a final diagnosis. My husband started out with a tremor in one hand and then the other. After Botox Injections in fingers hand and lower arm that started around 1993 and diagnosis of essential tremor. Different medications, none of which worked. Tested for all auto immune diseases and no diagnosis there. Then DB stimulators but all for essential tremors.
Diagnosis after 25 years
Then they did EMG and tested for stiff man disease as his balance was off and he walked extremely slow. These tests were all done at a reputable movement disorder clinic. He is also a patient at the VA for Agent Orange And that is where he was finally diagnosed with PD after a 25 or 26 year struggle and no treatment for his actual problem. Frustrating.
On average, how many times per month do you (or your caregiver) go to the pharmacy?
Join the conversation