September 11, 2020
Finally diagnosed in July 2018. Got severely depressed, suicidal and all that fun stuff. Left an abusive marriage a few months before and left the state to live with my son. With lots of prayer and support I am doing better. Being considered for DBS and feeling hopeful.
September 11, 2020
Thanks for sharing so openly here, Patsy. That sounds so incredibly difficult, and I'm sorry you went through those experiences. Sounds like you had a lot of great support that was much needed. Hope you can keep us updated with the DBS. In case you're interested in reading more, we have some more information and experiences about DBS here: https://parkinsonsdisease.net/stories/dbs-thankful/ & https://parkinsonsdisease.net/clinical/deep-brain-stimulation-pros-cons/. Take care. - Chris, ParkinsonsDisease.net Team
October 9, 2020
Hello @Patsy. You said a lot in your short post. I hope your screening for DBS goes well and that your movement disorder specialist is helpful as you learn more about the procedure and anticipated outcomes. Keep us informed if you will. Lorraine, parkinsonsdisease.net moderator
December 1, 2020
ALso glad to hear that you are feeling more hopeful Patsy! I am also hoping for more positive feelings as I move deeper into my acceptance of Parkinsons. I was actually diagnosed in an odd sort of way about 4 years ago. First told I could go home and tell my family that I didn't have Parkinsons (hmmm). I was told it Essential Tremor in my left hand and I just felt like that was incorrect. Long story short, my Doc says I have Early Onset Parkinsons which to me meant that instead of having a complete "Happy Meal with Fries and drink", I only had the fries. So, what in the world do I do with that? So, I think I absolutely threw my Mom for a loop a week later when, nonchalantly I answered her question about having Parkinsons with "Well, I think I might!" Up until about six months ago, this is how I've been approaching my diagnosis. Needless to say, my realization is hitting me like a ton of bricks. I have two daughters, 15 and 13, a husband, two dogs and two cats that desperately need me and all I can think about is how am I going to do this. My meds are unregulated right now to the point where I spent the entire weekend on the floor in my basement crying so hard I fell asleep. Just to wake up the next day and do it all again. I hope and PRAY that my Neurologist is correct in his thought process with my meds and I am thankful that he has finally agreed to DBS. I'll do anything to stop the painful tremor that leaves me in tears🙁