Dare to Care about Self-Care...Managing my Parkinson’s disease is a daily challenge. Often it feels like a burden and a chore. It can feel like having a full-time job (but frustratingly without the paycheck)... By Shamsa3 min readBookmark for laterReactions 0 reactions Comments0 comments
Active yesterdayI just haven't found the right doctor yet?...Hi Guys.... I'm new here, but I have been dealing with something for about 28 months now. In 2022, I went to a neurologist for the fist time. He sent...Reactions 0 reactions Comments0 repliesCopingApathy
Active 2 days ago blood pressure fluctuations ...In the morning when I get up, my blood pressure is normal. After about an hour I can feel my blood pressure dropping as much as 20+ points. My neurologist...Reactions 0 reactions Comments1 replies
Journey Is A Stupid Word...Who the hell came up with the word journey to describe living with a life long debilitating, progressive disease like Parkinson’s? What a ridiculously, stupid and demeaning term to use... By Cindi6 min readBookmark for laterReactions 0 reactions Comments0 comments
My Parkinson's experience...Hello there, well here I go. I'm 60 and started to experience parky symptoms around 2014. I was diagnosed "officially" in 2019. During those 5 years and on, I continued... By CommunityMember1af90c1 min readBookmark for laterReactions 0 reactions Comments0 comments
Mouthrinses/washes...As someone who has worked in the dental industry for many years, please heed my advice. Do not use over the counter mouthrinses, they are very bad for your oral...Reactions 0 reactions Comments0 repliesAwareness
Diagnosed with PD 21 years ago. Discovered so many people you encounter while out in public are amazingly kind and understanding!...Even though I was very fortunate not to begin dealing with typical Parkinson’s issues until 3 to 4 years ago, including my ability to walk without assistance. Expecting some negative...Reactions 0 reactions Comments1 replies
Levadopa every 2 hours?...Hi I was diagnosed with pd Feb 23. And I am taking lrvadopa 25/100 1 1/2 pills every 4 hours. I see my neurologist in a few weeks but I'm...Reactions 0 reactions Comments2 replies
Parkinson's Disease. “Parkinson's Misdiagnosis? My Journey to the Correct Diagnosis...A must see 40 second video\ for you or anyone you know that might be worried about Parkinson's Disease. “Parkinson's Misdiagnosis? My Journey to the Correct Diagnosis”is https://youtu.be/xexTLW-9Fc4...Reactions 0 reactions Comments0 repliesCopingParkinsonism
What makes a clinical trial appealing? What if it is for a new device or totally new way to treat Parkinson's?...I am a resident physician with a passion for Parkinson’s disease research that stems from my mother’s diagnosis of young-onset PD about 15 years ago. As I move forward with...Reactions 0 reactions Comments0 repliesResearch & Clinical TrialsYoung Onset (YOPD)Treatment
Active todayMucuna Pruriens Supplements......Has anybody had any luck using Mucuna Pruriens to cope with PD? As I understand it doctors do not recommend their use but what are suffers supposed to do when...Reactions 0 reactions Comments3 repliesCoping
I can't stop feeling sorry for myself and guilty of the burden for my family...I was diagnosed with Early Onset PD at 45 (5 days after my birthday actually) I was OK at first, even when, 5 months later I was diagnosed with breast...Reactions 0 reactions Comments2 repliesDepressionYoung Onset (YOPD)Tips & Advice
Active 7 days agoOn carbo levadopa 14 months...Hello, I was diagnosed with parkinsons about 15 months ago..I am taking levadopa 25/100 every 4 hours, but it seems to wear off in about just under e hours..I have...Reactions 0 reactions Comments2 replies
Rasagiline and Fatigue: A Follow Up...In a previously published article, Posy tried to find out if anyone else thought that perhaps Rasagiline was making them tired. Posy was taking 1 tablet a day first thing... By Posy2 min readBookmark for laterReactions 0 reactions Comments10 comments
Parkinson's and Toxic Exposure (Burn Pits) - Military Veteran...I'm a 53 year old male who was diagnosed with Parkinson's at age 47. I noticed a tremor in my left hand one day and shrugged it off for a...Reactions 0 reactions Comments0 replies
Terrible fear of developing dementia ...I was finally diagnosed last year. There seem to be so many aspects of PD. I am very afraid of losing my cognitive abilities. I had some testing done a...Reactions 0 reactions Comments3 repliesCognitive Issues
Active todaySymptoms of PD...Hi, I'm new here. I am 67, diagnosed 2 years ago. Right now I have trembling in my hands and taking L/C which has been working. I'm mostly wondering about...Reactions 0 reactions Comments11 repliesApathyCopingAwareness
Dealing with unknown ...I am 61 years old and was diagnosed 4 years ago after a number of years refusing exam. My symptoms are primarily tremor related as of now. I’m really having...Reactions 0 reactions Comments2 repliesAcceptanceCopingApathy
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 3)...This story is the last installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here and Part 2 can be found here. The person or... By ParkinsonsDisease.net Team4 min readBookmark for laterReactions 0 reactions Comments0 comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 2)...This story is the second installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here. First recommendation: ENLIST HELP!! This is supposed to be fun... By ParkinsonsDisease.net Team6 min readBookmark for laterReactions 0 reactions Comments0 comments
