The Illusion of Control: Adapting to Parkinson's Disease (Part 1 of 3)"Fear is the cheapest room in the house, I'd like to see you living in better conditions." - Hafiz In this time of unprecedented horrors and ongoing injustice, I find...Reactions0reactionsComments1 comments
My Experience Using CBD Oil for Parkinson's SymptomsOne of the most difficult decisions a person with Parkinson’s disease (PD) will face is deciding what medications to use to treat the disease. The choice is a function of...Reactions0reactionsComments4 comments
Primer on Parkinson’s (Part 3A): Non-Motor SymptomsMost everyone thinks of Parkinson's as a movement disorder. We call the most common motor symptoms of rigidity, bradykinesia (slow movement), tremor, and postural instability, the cardinal signs of Parkinson’s...Reactions0reactionsComments3 comments
Why My Body Already Hates BrexitIt’s a normal weekday, I’m at work and I’m struggling. Every movement I make is slow, my limbs ache and I feel like crying. But there are meetings to attend...Reactions0reactionsComments2 comments
Staying Active at Home with Parkinson’sExercise improves function and quality of life for people with Parkinson’s disease. But sometimes you just don’t feel like going out for exercise. You’re tired, the weather is bad, or...Reactions0reactionsComments2 comments
The Duality of Illness: Terms We Should KnowWhen it comes to trying to explain how we feel on a particular day, it can be difficult to articulate in a way for someone without our exact illness (in...Reactions0reactionsComments16 comments
A Letter to My Former Self: Surviving a Parkinson's DiagnosisThere will be days you will want to quit. I know you can do this not just because I am like you but because I AM YOU. You (I) will...Reactions0reactionsComments9 comments
Thanks for the Memories, Ricketts GlenRecently, I set out on a pilgrimage to spend an afternoon figuring my Parkie self out. Not as emotional or spiritual as a "vision quest”, but I would still be...Reactions0reactionsComments2 comments
Are Ataxia and Parkinson’s Disease Related?Ataxia is a word used to describe any type of uncoordinated movement. It comes from the Greek term “a taxis,” which means “without order.” According to the National Ataxia Foundation...Reactions0reactionsComments0 comments
7 Triggers That May Heighten Your Parkinson’s SymptomsGetting a handle on what activates or triggers Parkinson's symptoms can be a mystery. However, the longer you’ve had the illness and the closer you pay attention to your circumstances...Reactions0reactionsComments6 comments
Traveling the Rocky Treatment Path With Parkinson’sAnyone affected by Parkinson’s disease knows how challenging and debilitating it can be, especially as the condition advances from early to late stage. People diagnosed with Parkinson’s, as well as...Reactions0reactionsComments4 comments
Is There a Link Between Lyme Disease and Neurodegenerative Disorders?Many people with disorders that affect the brain wonder if there is a link between their disease and Lyme disease (LD). These brain disorders can include Parkinson’s disease, Alzheimer’s disease...Reactions0reactionsComments1 comments
For the Worriers: Moving from “What If?” to “What Now?”A few weeks ago, I met Dale. Similar to many people recently diagnosed with Parkinson’s disease, Dale struggles with worry; sometimes, mightily. Still in his 40s, he worries about rapid...Reactions0reactionsComments9 comments
Don't Cry For Me...I’ve just started a new job, well sort of job. It’s a 9 month business builder programme, creating a company which solves the challenges faced by older adults. I’m incredibly...Reactions0reactionsComments4 comments
Do I Have Parkinson's or Progressive Supranuclear Palsy (PSP)?There are medical conditions that exist that are called Parkinsonian-like conditions or Parkinsonian-like syndromes. These conditions mimic Parkinson's disease (PD), but they are considered their own separate entities. These conditions...Reactions0reactionsComments7 comments
Searching for Silver Linings: How to Stay Positive with Parkinson'sSince I was diagnosed I have tried to stay positive. It’s often tough to see the good in difficult situations but I really believe it’s got me through the last...Reactions0reactionsComments48 comments
A Round Character in My Own Parkinson's StoryWay back when (1997), my English professor explained how all good stories were journeys to somewhere. Sometimes, they were physical, while other times they were internal. At that time, I...Reactions0reactionsComments2 comments
How to Help a Loved One in Denial About Their Worsening IllnessGetting news that you have been diagnosed with a chronic illness can be very scary, especially one that tends to worsen over time. There are many coping mechanisms that patients...Reactions0reactionsComments1 comments
Facing the Reality of the Parkinson's DiagnosisIt took about two years for my physicians to sort through the array of maladies I had before ultimately reaching the decision it was Parkinson's. In hindsight, it was a...Reactions0reactionsComments6 comments
Speak Up for Yourself: A Website for Your Voice“How are you? No, for once, I’m not here to tell you how I am. How are you?” I talk about myself a lot, but that tends to be the...Reactions0reactionsComments3 comments