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Read conversations, start a discussion, and connect with others about Parkinson's disease.

Groaning sounds

Hello all , My dad has been recently diagnosed with Parkinson’s.He is making groaning sounds every day sometimes most of the day. I have asked him is he in pain...

Care for my husband

Hello All, l wrote quite awhile ago about my husband not wanting to go to specialist in Parkinson's. I finally found a doctor and we went in Sept 2019. He...

Crispr. Stem Cell (autologous or allogeneic) and Gene Therapy as possible treatm

For the past 7 years i have exhaustively read/researched/participated (still in one) all the science, news and trials for this disease which will be cured/slowed/prevented in our lifetime! i am...

Caregiving Tips

Caregiving for someone with Parkinson's disease can be very demanding. What are some tips that you have to cope with the daily challenges?...

Support Groups

Our leadership team has an ongoing quest to offer the best support group meeting we can each time we meet. Should we always arrange for a guest speaker? Should we...

Rytary: Getting tremors both mid dose and end of dose

A few months into Rytary. While I was "on" except at dosage switching times for the first few months, I am now additionally getting tremors mid dose consistently. Any tips...

Traveling with Parkinson's

Managing your PD symptoms can be difficult while on vacation, or just going to the store. What are some tips you have to manage your PD when you’re away from...

Med for PD

It seems like the medication that I have been making the diag, which was May, is worse? Sinemet...Is there anyone else that has had this happen to?...

Sleepwalking

I have vivid dreams with movement that Alan Alda mentioned in an interview. I am curious though if there is any statistics on childhood sleepwalking correlating with adult onset Parkinsons?...

Having DBS done and going to the dentist

My husband had the DBS done and he has to get his teeth cleaned by hand and not using the drill. His neurologist doctor said it might interfere with his...

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