Lewy Body Dementia
My husband was originally told he had Parkinsonisms. We then went to the University of Michigan and he was given the diagnosis of Lewy Body Dementia. They have even enrolled him in a 4 year research study for LBD. Are there any Lewy Body sites similar to this I can connect with? I find there is little of my husband’s issues comparable to what I read about Parkinson’s.
Hi
, thanks for your question. A new diagnosis can be a lot to process and we completely understand how important it is to find support and connections that are specific to you and your husbands experience. Have you tried looking into the Lewy Body Dementia Association? Here is their website: https://www.lbda.org/ It looks like there support groups available and a helpline as well. I hope this helps. Others may jump in with additional suggestions, too. Take care, Lauren (ParkinsonsDisease.net Team) 
Hello, Lauren provided a great resource. I'm just jumping in to say that I have had luck with consulting with a social worker for my father with PD at his neurology office. Then can provide local resources for both of you- physical therapy etc for your husband. They put into a bigger picture how his doctor will help manage his care and give you some counseling support too. Let us know how it goes. All the best, Suzanne Troy, team member for ParkinsonsDisease.net
