Husband unable to move !
Hi my husband has PD for five years and takes Sinemet plus. Last night he had a little more to drink than usual and he forgot to take his Sinemet dose. What upset me was that he was unable to move in the bed about two hours after the missed dose. He couldn’t get comfortable and could’nt move and he was too heavy for me to move. He eventually took his missed dose and was alright about an hour later. But it gave me a view of what things might be like in the future and it scared me.
Thank you for the post, Trish. I am sorry that your husband forgot to take his PD medicine. However, it was a good thing that he took it later on. As he experienced, taking PD medications on time regularly, is very important in his regimen. Regards,Marc M., Moderator, parkinsonsdisease.net
Trisha, I can imagine how you felt. Since I am the person with PD, I worry for my husband. Thus far, I am very good about taking meds on time. I do not know if your husband would be receptive to this idea, but maybe you two could agree that when he is drinking, you will give him his meds to take at the time he needs them. That might give less stress all around. Please be sure to take care of your own wellbeing. Kind regards, Lorraine, parkinsonsdisease.net moderator.
Hi Trisha, I'm 69 and was diagnosed with Parkinson's when I was 60. Usually I can hide it, but sometimes it comes back with a vengeance. I can't write anything anyone can read. The thing that nobody sees is the depression and anxiety that comes with it, and the fact that you feel no pleasure. Take care of him and every bit take care of yourself.....Bob Thank you for your comment, rfry101. I agree with your comment that people do not see the non-motor symptoms of depression, anxiety, and anhedonia that can arise. More education is needed on these non-motor symptoms. Best, Marc M., Moderator, parkinsonsisease.net
Thank you for your reply - I am trying to take care of my own well-being but sometimes it’s difficult.
Blessings on your holiday Trisha. If you do not have family or friends to help you sometimes it helps to talk to a social worker to help you and your husband to map out where he is now and to help you process the feelings for both of you as the PwP and the spouse/carepartner. My mom and I talk to a social worker on occasion that is on staff at my father's neurology office. She really understands the disease and can also help offer resources that might work for your husband at this point in his life. Please keep in touch on how things are going. All the best, Suzanne T.
Thank you Suzanne for the reply - we have a neurologists visit in February so I will discuss things then and see what help is available.
