irisnola
My boyfriend has been diagnosed with Parkinson’s. I really need help. All I do is cry. I am afraid to cry in front of him because I feel that I need to be strong for him. It is okay for me to share how I feel? We just found out last week is it to soon? I am not sure I can be his care giver. I have such a demanding job. I am trying to learn as much as possible. I am very depressed but mostly because I don’t want him to suffer. Am I jumping to conclusions? Please help.
Pat LaPointe Member
I think the first thing would be to ask him how he is feeling about the diagnosis. It may not have truly sunken in yet. Have him explain what having the Parkinson's symptoms fee like. Ask him what he needs from you and be honest about what you are able to give him. Ask him how he feels his life might be different now. Share your concerns. Also share any information you get about Parkinson's with him. This site has great information as do the many of the books on the topic. You will also find support for you as his partner on this site.
Remember also that Parkinson's is different for most people. You can read about stages but know it doesn't progress the same for everyone.
I've had Parkinson's for over three years. When I was first diagnosed, I asked my husband to give me a little time to let it sink in. It wasn't long before we began having conversations about what we needed from each other.
Suzanne Troy Member
irisnola Member
Suzanne Troy Member
https://parkinsonsdisease.net/living/newly-diagnosed-whats-next
All the best, Suzanne Troy, team member
irisnola Member
Good morning, this is a very sad day for me. His therapist and him seem to think that they know whats best for me. He broke up with me last night. Said he didn't want to burden me. I think i am capable of deciding what I want and dont want in my life. Not one day since he was diagnosed did i want out. I was scared yes and i think its natural but i was with him. I was really surprised and heartbroken..I dont let just anyone into my life..I wanted to be there with him. He didn't even tell me he was seeing a therapist until last night. When i looked at him i never saw the illness i only saw the man i love. Maybe that's what i did wrong..I dont know. I have been really good to him.
Jessica.H Community Admin
Marc Mitnick Member
Pat LaPointe Member
irisnola, I am so sorry to hear that he broke up with you, Just the fact that you contacted this site for advice shows how you intended to continue to be there for him.
Pat LaPointe