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Read conversations, start a discussion, and connect with others about Parkinson's disease.

Things are changing too fast

Hi my name is Bill I was told that I had Parkinson’s 3 years ago. But the changes are coming on way to fast. I believe that I have had...

Share the truth about Parkinson's disease

About 60,000 people in the United States are diagnosed each year with PD in the United States. To better understand the patient experience and realities of PD, we are fielding...

First Parkinson's and now Lewy Body Dementia

My mother was diagnosed 3.5 years ago with Parkinson's, which has been managed pretty well. Balance is really the main issue. However, 2.5 months ago she had a massive change...

Flying with Orthostatic Hypotension for Parkinson's patients

My father is 78 years old and suffering from Parkinson's disease since 5 years now. He tested positive for Covid last year and since then his Parkinson's has significantly deteriorated...

How to get the best out of DBS

DBS is gaining popularity. It is effective. There are a few PWPs who have got the surgery. What regime of exercise should be followed so that best results can be...

Feeling confused

I have all the symptoms of Parkinson’s, but after a normal MRI and datscan my neurologist thinks I have Functional neurological disorder, however my uncle who does have Parkinson’s believes...

Do I have PD?

My father was diagnosed at 45 and passed away at 60, that was 22 yrs ago. I am 57 yr old female and started with tremors on right side from...

stem cell treatment for PD

Does anyone have any information about stem cell treatment for PD?...

Balance issue

I’m new to diagnosis and today I had a feeling like a magnet was pulling me over to one side and almost fell. Is this related to Parkinson’s?...

Retail Accommodations, or the lack thereof

The other day, I visited the optometrist to order new eyeglasses. As my Vascular Parkinsonism limits me, I asked if they had a high chair, or one with arms, so...

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