Care Partner Journey...My name is Leslie Peters and my journey began in 1998 when my mother in law, Mary, was diagnosed with Parkinson's disease. At that time I had no idea what...Reactions0reactionsComments6 comments
We are in this together...My husband and I are retired and in our 70s, well I'm only 70! My husband was diagnosed about nine months ago. When I look back he had small indications...Reactions0reactionsComments2 comments
PseudoBulbar Affect (PBA) and Parkinson's...PseudoBulbar Affect (PBA) is a condition that can occur in people with a variety of neurological conditions, including Parkinson's disease (PD). PBA is characterized by sudden, uncontrollable outbursts of crying...
For Care Partners: Taking Care of Your Health and Self...As a Parkinson’s disease care partner/caregiver, my “to do” list is pretty long but it recently got much longer due to bronchitis and a sinus infection last fall and another...Reactions0reactionsComments4 comments
Discovering My Parkinson's: Four Words I Hope Never to Forget...I knewwithout research, what this gradual change in small motor dexterity, meant. A neurological disease had taken another brain, mine. and here I'd planned so well for an idyllic retirement...Reactions0reactionsComments0 comments
Dystonia...Dystonia is a movement disorder where muscles contract involuntarily. It can cause twisting of limbs, repetitive movements, or abnormal postures. Dystonia is often seen in people with Parkinson's disease (PD)...
What Is Dyskinesia?...Dyskinesias are movements that you cannot control. They often happen when you try to do something on your own, like walk or talk. Dyskinesias are common in people who have...
My Son...My oldest son has parkinsons he was told 6 years ago he is going to a doctor but is not getting any thing but blood pressure med it is not...Reactions0reactionsComments2 replies
April is for Awareness and Education...April is Parkinson’s Disease (PD) Awareness Month. All across the world, people living with this disease are proclaiming, “Hey, I have Parkinson’s disease!” Just what is PD you ask? The...Reactions0reactionsComments0 comments
Fear of the Future: Caring for Someone with Parkinson’s...As a chronic and progressive disease, Parkinson’s disease (PD) is emotionally taxing for both the person who has it and their caregiver. In Health Union’s Parkinson’s Disease in America 2017...Reactions0reactionsComments12 comments
Parkinson's and Lewy Body Dementia: What's the Difference?...If you have been diagnosed with Parkinson’s disease (PD), you may have heard of Lewy body dementia (LBD). Are they the same? Are they different? Although PD and LBD may...Reactions0reactionsComments8 comments
How To Provide Care: 5 Helpful Tips for Caregivers...Receiving a diagnosis of Parkinson's disease (PD) can be a life-altering experience, not only for the person with the diagnosis, but also for the spouse, child, parent or friend who...Reactions0reactionsComments4 comments
Matthew Zepelin...Matt was previously an advocate on ParkinsonsDisease.net. Matt Zepelin is a mindfulness teacher, Certified Feldenkrais Practitioner®, and PhD candidate (University of Colorado) located in Boulder, Colorado. Matt has worked with...
Peter Whyte...Peter was previously an advocate on ParkinsonsDisease.net. Peter Whyte is 66 years old and is a semi-retired founder and investor in startup technology companies. One of the companies he co-founded in...
Michael Church...Michael was previously a health leader on ParkinsonsDisease.net. Michael J Church was diagnosed with Parkinson's Disease (PD) at the age of 32. He was surprised at the diagnosis at such...
Gretchen Church...Gretchen was previously a health leader on ParkinsonsDisease.net. Gretchen Church was diagnosed with Young Onset Parkinson’s Disease at 32 years old. 17 years later she is still going strong. 15...
Kirk Hall...Kirk was previously an advocate on ParkinsonsDisease.net. Kirk Hall was surprised, to put it mildly, when he was diagnosed by a movement disorder neurologist with Parkinson’s disease (PD) in 2008...
Allison Smith...Allison was previously an advocate on ParkinsonsDisease.net. After surviving Colon Cancer at age 24, Allison was diagnosed with Parkinson’s disease when she was 32 years old. Three years of hiding the symptoms...
Angela Robb...Angela Robb is wife and care partner for her husband, Karl, who has young onset Parkinson's disease (PD). Angela met Karl post-diagnosis and they have been married for over twenty...
