50 Bits of Parkinson's Wisdom for Fifty YearsToday, August 26, 2021, I turn 50 years old. And it has been 5 years since Avalanche Day, aka the day of diagnosis (September 27.) However, I am 10 years...reactions11comments
Can Biofeedback Help Control My Parkinson’s Symptoms?About 35 years ago, I had been taught some biofeedback techniques while participating in a lupus clinical trial. Could biofeedback be applied to my Parkinson’s as well? Biofeedback is a...reactionscomments
Grandma, Can You Play?As my symptoms progressed and became more apparent, I wanted to explain my Parkinson’s disease to my 6 grandchildren. They range in age from 5 to 20 years old. I...reactions7comments
Saying Goodbye to My CarI didn’t come looking for you. I was intent on buying a "lesser" model. "Oh, but I have something that will be hard to resist" spoken like one would expect...reactions5comments
Build Good Memories TodayOnce upon a time, while chatting with a fellow teacher about how to engage our college students in their journey to academic success, we found ourselves in a discussion of...reactions7comments
Will My Father Have Access to Long Term Healthcare?I recently watched an episode of Jon Oliver’s show. My roommate had picked it to watch while we ate dinner. I had never watched Jon Oliver before. I knew of...reactionscomments
Understanding How Parkinson's FeelsMany people who mingle with Parkinson’s wonder how it feels. Here, I’d like to take you on a trip from top to bottom to give you my feels. My toes...reactions32comments
My Journey in Therapy Dealing with My Father's Parkinson'sIn September 2020, my father calmly expressed to my mother how depressed he felt as she got ready for work. When my mother called me that morning, she decided to...reactions4comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like Parkinson's Disease. Often...reactionscomments
Image Issues and ReputationWe hear how Posy dealt with the diagnosis of Parkinson's disease (PD). "Please, don't tell anyone until I have come to terms with it." She instructed her husband James and...reactionscomments
Confronting MortalityThe tears streamed down my face on a late fall morning in Michigan. I’d just made it to my cousin’s house after being home for a while. And I couldn’t...reactions2comments
Pebbles in the Pond: A Day with Parkinson’sEvery day with Parkinson’s is a balancing act between my medications, my body, and my attitude. I sometimes feel i'm juggling chainsaws, although that would provide a really bad outcome almost...reactionscomments
The Dreadfulness of the NightIn case you missed it, check out part 1 of this article, "Sleep, Old Buddy, Old Pal ... Where Are You? Night after night I foolishly go to bed hoping...reactionscomments
My Experience with ImpulsivityThis is the second of 2 articles on dealing with impulsivity. In the first part, "The Problem of Impulsivity and Parkinson's Disease," I discuss the causes of impulsivity. My struggle...reactionscomments
Noticing Dad's Facial MaskingI’m scrolling through comments on a Parkinson’s forum when I read a note from a stranger. She says that she struggles with "facial masking" and she hopes that her loved...reactions3comments
Never Count Yourself Out – Be GrittyOne of the best tools I have used to stick with daily exercising is grit. Grit as a personal characteristic is special. It is a blend of committing to a...reactions6comments
Neuropsychological AssessmentA sudden event and worsening neurological symptoms in my father forced me and my family to reach out to a specialized neurologist. This doctor has done extensive research in movement...reactionscomments
Medical Cannabis For Dyskinesia?My husband, Rob, suffers greatly from dyskinesia, those involuntary movements caused by being on the carbidopa/levodopa for over 20 years. These movements are different from the Parkinson's disease (PD) tremors...reactions1comment
Swimming and Parkinson’sEvery year, my family travels up north to enjoy a week-long vacation on a Michigan lake. Historically, we’ve travelled to the lapping waves of Lake Huron to freeze our toes...reactionscomments
Sleep, Old Buddy, Old Pal ... Where Are You?Parkinson’s disease has many faces ... many guises. Do not be naive and underestimate it. Evidently, there are overt symptoms, which are hard to ignore in the cold light of...reactions4comments