Becoming an Amateur Artist Helped My Parkinson's SymptomsAbout 35 years ago, I was working in an assisted living facility as a speech pathologist. I entered Sam's room to evaluate speech, voice, and swallow functioning. He was a nice... By Marc Mitnick2 min readBookmark for laterReactions 0 reactions Comments8 comments
Understanding Cramping and Parkinson’s DiseaseI recently woke up to a message from my dad. He wrote: "Mary Beth, you should look and see if there’s a correlation between cramping and Parkinson’s." It seems that... By MaryBeth Skylis2 min readBookmark for laterReactions 0 reactions Comments0 comments
Chewing on GuiltI'd be lying if I told you that I don't struggle with guilt. Watching your dad cope with Parkinson's disease through a screen seems callous. When we talk on the... By MaryBeth Skylis2 min readBookmark for laterReactions 0 reactions Comments1 comments
Pregnancy and (Undiagnosed) Parkinson’s DiseaseI was commuting to work when I noticed that something was significantly wrong with my left arm and leg. The limbs on the left side of my body were significantly... By Shamsa3 min readBookmark for laterReactions 0 reactions Comments2 comments
Looking at Research on Life Expectancy with Parkinson’sWhen my dad was diagnosed with Parkinson’s in 2013, I responded with denial. I assumed that, if he really had it, his life would be snuffed out too soon. That... By MaryBeth Skylis3 min readBookmark for laterReactions 0 reactions Comments0 comments
Deciding to Get the COVID Vaccine with Parkinson'sWhen my dad signed himself up to receive the COVID-19 vaccine, a flood of relief washed over me. Both of my parents are in their 60s, and I limited my... By MaryBeth Skylis2 min readBookmark for laterReactions 0 reactions Comments0 comments
Caregiver Survival Skills From the Wild WestMy husband and I recently went on a trip to Glacier National Park in Montana. We had an amazing time and we were blessed by good weather. We chose to go on... By Suzanne Troy3 min readBookmark for laterReactions 0 reactions Comments2 comments
50 Bits of Parkinson's Wisdom for Fifty YearsToday, August 26, 2021, I turn 50 years old. And it has been 5 years since Avalanche Day, aka the day of diagnosis (September 27.) However, I am 10 years... By Dan Glass5 min readBookmark for laterReactions 0 reactions Comments11 comments
Can Biofeedback Help Control My Parkinson’s Symptoms?About 35 years ago, I had been taught some biofeedback techniques while participating in a lupus clinical trial. Could biofeedback be applied to my Parkinson’s as well? Biofeedback is a... By Thea Destephano2 min readBookmark for laterReactions 0 reactions Comments0 comments
Grandma, Can You Play?As my symptoms progressed and became more apparent, I wanted to explain my Parkinson’s disease to my 6 grandchildren. They range in age from 5 to 20 years old. I... By Thea Destephano2 min readBookmark for laterReactions 0 reactions Comments7 comments
Saying Goodbye to My CarI didn’t come looking for you. I was intent on buying a "lesser" model. "Oh, but I have something that will be hard to resist" spoken like one would expect... By Pat LaPointe2 min readBookmark for laterReactions 0 reactions Comments5 comments
Build Good Memories TodayOnce upon a time, while chatting with a fellow teacher about how to engage our college students in their journey to academic success, we found ourselves in a discussion of... By Lorraine Wilson3 min readBookmark for laterReactions 0 reactions Comments7 comments
Will My Father Have Access to Long Term Healthcare?I recently watched an episode of Jon Oliver’s show. My roommate had picked it to watch while we ate dinner. I had never watched Jon Oliver before. I knew of... By Juwairiya Syed3 min readBookmark for laterReactions 0 reactions Comments0 comments
Understanding How Parkinson's FeelsMany people who mingle with Parkinson’s wonder how it feels. Here, I’d like to take you on a trip from top to bottom to give you my feels. My toes... By Dan Glass2 min readBookmark for laterReactions 0 reactions Comments32 comments
My Journey in Therapy Dealing with My Father's Parkinson'sIn September 2020, my father calmly expressed to my mother how depressed he felt as she got ready for work. When my mother called me that morning, she decided to... By Juwairiya Syed3 min readBookmark for laterReactions 0 reactions Comments4 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like Parkinson's Disease. Often... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Image Issues and ReputationWe hear how Posy dealt with the diagnosis of Parkinson's disease (PD). "Please, don't tell anyone until I have come to terms with it." She instructed her husband James and... By Posy2 min readBookmark for laterReactions 0 reactions Comments0 comments
Confronting MortalityThe tears streamed down my face on a late fall morning in Michigan. I’d just made it to my cousin’s house after being home for a while. And I couldn’t... By MaryBeth Skylis2 min readBookmark for laterReactions 0 reactions Comments2 comments
Pebbles in the Pond: A Day with Parkinson’sEvery day with Parkinson’s is a balancing act between my medications, my body, and my attitude. I sometimes feel i'm juggling chainsaws, although that would provide a really bad outcome almost... By Phil Horton3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Dreadfulness of the NightIn case you missed it, check out part 1 of this article, "Sleep, Old Buddy, Old Pal ... Where Are You? Night after night I foolishly go to bed hoping... By Shamsa3 min readBookmark for laterReactions 0 reactions Comments0 comments