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Read conversations, start a discussion, and connect with others about Parkinson's disease.

Giving Bad News

I just learned that my 85 yearold father's (who is level 5 bedridden but still very cognitive on great days) baby brother has stage 4 pancreatic cancer which has spread...

Newly-diagnosed

Hi! I am 61 (for another few weeks), and male. I saw a neurologist today & she has put me on something called Sinemet, half-a-pill, twice a day. She gave...

Parkinson's Psychosis. How do I deal with it? I can't deal with it!

I am a 50 year old and I am in Parkinson's Psychosis. I am hallucinating a lot and I seem not to be able to figure out anything in my...

Falling

I am so afraid of falling it is unbelievable. I have to hold on to everything and I shuffle more. I fall a lot too....

Breathing difficulties

I am in hospital now having been admitted to have a pump fitted as pills don't control m.y vile and terrifying symptoms of tightness of throat.neck,stomach and belly leading to...

Living with the Parkinson's demon

I know my title may seem like there is no hope, but it's a demon I personally want to beat. I'm a person who if you say I can't do...

Does anyone identify with these symptoms

I have no motor Parkinson's and was diagnosed in 2022. The symptom that I struggle so much with is when my dopermine is low or none there . Basically an...

What are your tips for finding good specialists?

Share your tips with fellow community members looking for various specialists (movement disorder specialists, PT, dietician, etc). If you haven’t found a good one, what challenges have you faced?...

Accepting the Changes

Life isn't easy for anyone. About eleven years ago, I was diagnosed with Parkinson's Disease (PD). I had no idea how it would affect me or how severe it could...

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Fill in the blank: "I overcome apathy by ___."

We posted this fill in the blank prompt on our Facebook page, so we wanted to see what answers we got here in our forums. Respond below!...

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