Stories

Hi my name is Joan, I am an 83 year old woman living in a lovely little market town called Thornbury, South Glos. I have been diagnosed with Parkinson's disease...

I was diagnosed with young-onset Parkinson's disease (YOPD) at 42 years old, but I think I had YOPD during my teenage years because at that time my voice become lower...

My name is Tony, and I've had this disease for over 20 years, in 2 months I'll be 59. I had to stop working as a heavy vehicle technician with...

My appointment came through for 1st August 2013 – only 2 months after my diagnosis. Well impressed! I asked a good friend J to accompany me to my first appointment...

On a December morning in 2019, I was pleased to see a new episode of Tim Harford’s podcast, "Cautionary Tales," in my playlist. The episode’s curious title, "Bowie, Jazz, and...

It is almost the end of April 2013 and I went to see my GP with my list of symptoms all affecting the left hand side of my body. I...

April 2013 and I manage to get through the ski holiday, not without a good degree of stress. On the last day Phil (husband) and Jordy (younger son) take Mark...

I'm 59 in a couple of months, I've not been able to work for three years. I live in the UK with the most amazing woman, I simply wouldn't have...

Roughly 5 years ago my hands started to shake. Soon there after I began spilling and dropping things, then breaking things. Interesting it never occurred to me that something was...

Lose my balance momentarily when getting out of bed. Feels like I would fall if I did not suddenly grab onto something to steady myself. Could be a table, or...

Little did I know or was told by my GP "take one a day and you will feel much better" Well thirty years later I am still taking one a...

After three years, 18 falls, two admittances to A&E, resulting many fractures. First it was his knee causing falls. His core became ridged. Finally in February 2023, Parkinson’s disease was...

I began having tremors in the left hand in Nov 2020. Due to Covid, I preferred an online consultation with the neurologist. Based on his assessment on video, I was...

I never shared my story before or made a formal announcement of having PD, so here it goes ... I was diagnosed in 2012 but I had my suspicion earlier...

My reaction to my Parkinson’s diagnosis was an answer to why I was falling and shaky. Having an answer was a relief but the Parkinson’s diagnosis was shattering. My condition...

I think my husband has had Parkinson's for more than 10 years. Unfortunately his multiple doctors did not communicate with each other and no one would take my concerns seriously...

My last submission was several years ago, so please forgive me if I repeat anything. I was first diagnosed with Parkinson’s at the end of 2016 by a Parkinson’s specialist...

In 1968 I was really depressed after 15 months in Nam, before I thought of suicide, God sent and an angel named Mily. She was the most beautiful girl in...

Parkinson’s? Started with Foot drop? (2013) 10 years ago approximately, my wife noticed something up with my foot while walking on the beach in Bucerias, Mexico. This lasted for about...

I was diagnosed with Parkinson's in February of this year. I don't know how I feel. Yes, I have tremors and restless legs, but the biggest change I have seen...