Q&A
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Pain in lower back and buttocks
Almost daily I suffer with pain (sometimes severe) in either the lower back and or deep in the buttocks, My …
What do you wish others knew about being a caregiver or care partner?
It can sometimes be hard to express what it’s like to be on the journey of Parkinson’s caregiving. What do …
What are your tips for finding good specialists?
Share your tips with fellow community members looking for various specialists (movement disorder specialists, PT, dietician, etc). If you haven’t …
Is severe weakness common with Parkinson’s?
I was diagnosed less than 1 month ago – I can hardly walk because of severe weakness and pain in …
Can I live with Parkinson’s disease without the drugs?
How do you find light in the darkness?
As a moderator for this site, I read a lot of comments. While many represent the reality of the disease, …
Does anyone else have toe cramping?
When medication starts to wear off my big toe feels like the circulation is being cut off. I take meds …
What kind of support do you have or wish you had to help manage PD?
How do you educate others about PD?
What does Parkinson’s disease awareness mean to you?
Are side effects to meds delayed with delayed initiation of meds?
If two people are diagnosed with PD in 2010 and 1 starts meds and the other delays for 2 years …
In what ways has Parkinson’s changed your relationships with your loved ones?
Does anyone experience dystonia?
I am having problems with my legs and arms jerking and spasms periodically. Dr said was dystonia. Can anyone relate …
Are tremors a true sign or symptom of Parkinson’s?
I am in denial of having Parkinson disease because I have no tremors. Is this a true sign or symptom …
Does anyone else have a jerking motion in the eyeballs prior to losing balance and falling?
Does PD cause you to lose bladder and bowel control?
Is there anyone who has had experience with coffee enemas?
My apologies for such a sensitive subject. …
Are there any positive experiences of being a musician with young onset Parkinson’s?
Any stories/examples/insights in to carrying on playing with PD. I am 38 musician pianist diagnosed last year; don’t know what …
What is “Reiki” therapy?
I was diagnosed about a year ago and I went about taking my meds and thinking I could beat/control this …