Have any of you with YOPD asked your doctor for a worst case scenario?
If so, what did the doctor say. …
Q&A
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How do you deal with involuntary movement above the waist?
My dyskinesia consists of my upper body swaying back and forth, my head moving around, and my hands in fairly …
Has any member had a kidney transplant and now has PD?
I had a kidney transplant in 2014 and now have been diagnosed with PD. I have not exercised in a …
Can anyone recommend easy reading novels, romance/mystery, for people with stage 4 Parkinson’s
My mother use to love to read. We swapped books all the time. Now her level of concentration has taken …
How to tell how advanced?
My wife was diagnosed in 2018 but more likely has had PD for ten to twenty years misdiagnosed as everything …
Any surgeons out there with PD?
hi, I am a general surgeon with new onset PD (tremor and bradykenesia). I am looking to connect to other …
Has anyone had success with occupational therapy or anything for worsening handwriting?
What are Final Stages of PD ?
Pain in lower back and buttocks
Almost daily I suffer with pain (sometimes severe) in either the lower back and or deep in the buttocks, My …
What do you wish others knew about being a caregiver or care partner?
It can sometimes be hard to express what it’s like to be on the journey of Parkinson’s caregiving. What do …
What are your tips for finding good specialists?
Share your tips with fellow community members looking for various specialists (movement disorder specialists, PT, dietician, etc). If you haven’t …
Is severe weakness common with Parkinson’s?
I was diagnosed less than 1 month ago – I can hardly walk because of severe weakness and pain in …
Can I live with Parkinson’s disease without the drugs?
How do you find light in the darkness?
As a moderator for this site, I read a lot of comments. While many represent the reality of the disease, …
Does anyone else have toe cramping?
When medication starts to wear off my big toe feels like the circulation is being cut off. I take meds …
What kind of support do you have or wish you had to help manage PD?
How do you educate others about PD?
What does Parkinson’s disease awareness mean to you?
Are side effects to meds delayed with delayed initiation of meds?
If two people are diagnosed with PD in 2010 and 1 starts meds and the other delays for 2 years …