It’s Not Just Your Voice: Parkinson's Communication BarriersWe communicate with more than our voices. When our voices, vision, hearing, and facial expressions are threatened, we do not want to be seen as "different" by others. Parkinson’s disease (PD) can cause...Reactions0reactionsComments2 comments
Parkinson's Status Check: The Ugly Truth of a DiagnosisFor those of us in the advocacy game, we expect to be contacted when someone's status changes to mirror our Parkinson's diagnosis. In my four years of being medically-labeled with...Reactions0reactionsComments8 comments
Top Parkinson's Reads of 2020: A Year in ReviewAs the end of the year approaches, we wanted to take a moment to look back and share some of the most-read articles from 2020. Many community members were interested...Reactions0reactionsComments1 comments
Are Your Skin Problems Related to Parkinson’s?Over the years, I have often referred to myself as a Dermatology Poster Child. My skin has been sensitive since day 1 and has gotten progressively worse as I get...Reactions0reactionsComments6 comments
What Do You Know About Parkinson's Disease? Take Our Quiz!While Parkinson’s disease (PD) can affect everyone differently, there is common ground among community members. To find out more about how people with PD cope with their condition, manage their...Reactions0reactionsComments0 comments
Parkinson's Fatigue & NarcolepsyFor as long as I can remember, I've been prone to long sleeps. As a kid, I could hit the 10-12 hour point easily. In my early thirties, Friday night...Reactions0reactionsComments0 comments
Managing Parkinson’s Comorbidities: Routine Doctor VisitsOn August 26th, I celebrated my 49th journey around the sun. The next day, I went for a maintenance / road-worthiness physical, which was my first in a couple of...Reactions0reactionsComments12 comments
The Parkinson’s Symptoms Nobody Talks About: Results From Our SurveyParkinson’s disease (PD) is a neurological disorder that affects a person’s ability to move. Most people associate PD with movement or motor symptoms like tremors, shaking, muscle stiffness, and poor...Reactions0reactionsComments28 comments
What Sleep Issues Do You Experience? Results From Our SurveySleep plays an important role in overall health and well-being. Unfortunately, it is common for people with Parkinson’s disease (PD) to experience a variety of sleep problems. These issues can...Reactions0reactionsComments4 comments
On Traveling When Your Dad Has Parkinson'sI’ve always had the kind of soul that’s hungry to see new beginnings - a gentle sunrise over the Smoky Mountains or pieces of coral reef emerging from the Costa...Reactions0reactionsComments2 comments
Parkinson's & the Circadian Role of MelatoninIt’s the time of year when we begin to feel some distinction in our bodies that relate to the change in light. Our body clocks, more formally known as our...Reactions0reactionsComments2 comments
Community Views: The Painful Truth About Parkinson’sParkinson’s disease is often a daily struggle, both for the person with the diagnosis and the loved ones providing care. It can be unpredictable, with life-altering symptoms that can feel...Reactions0reactionsComments4 comments
Lauren Simmons' Extraordinary Life with Parkinson'sWe have all read or heard inspiring stories of exceptional people with Parkinson's. Running marathons, riding bikes for great distances, or climbing mountains are all fantastic feats when you have...Reactions0reactionsComments5 comments
Caregiver Resources: Where Caregivers Can Go for SupportMillions of people are caring for loved ones who are sick or disabled. In fact, some 25 percent of U.S. adults report providing care or assistance to someone with a...Reactions0reactionsComments0 comments
How To Get Through Days When You Can't Fight Parkinson's AnymoreWe have all been there. After a bad night you give up and drag yourself out of bed. It’s 4:30am. Yes, 4:30! You are restless and you just have to...Reactions0reactionsComments2 comments
Building Connections & Parkinson's: Overcoming IsolationAfter a decade in Parkinson's advocacy, the most common hurdle reported by people with young-onset Parkinson's disease (YOPD) is not what you might think. It happens to be isolation. People...Reactions0reactionsComments2 comments
How To Stay Positive With Parkinson’s DiseaseMany people living with Parkinson’s disease (PD) say symptoms like fatigue, cognitive changes, and pain make navigating day-to-day life difficult. These and other challenging symptoms often impact physical, mental, emotional...Reactions0reactionsComments9 comments
Writing a Biography: These Last 4 YearsWhen you stop and think about it, 4 years is a long time. That’s 1,061 days since diagnosis to scribble in my biography. During this time, Parkinson’s has caused me...Reactions0reactionsComments3 comments
The Link Between COVID-19 & Parkinson's DiseaseOne wonderful personality trait of my Indian father’s is that he typically does not do what he does not want to do. Managing this with his Parkinson’s has not been...Reactions0reactionsComments0 comments
Couples and Parkinson's: Not Fight(ing) ClubThe not so wonderful thing about Parkinson's or any cruddy life situation is that it tests not only the person it happens to, but its debris lands on anyone within...Reactions0reactionsComments6 comments