What To Do When the Caregiver Becomes IllThe past several weeks have been a harsh reminder of what could happen when the person we depend on the most, our Parkinson's disease caregiver/partner, suddenly becomes ill. My husband...reactions5comments
Welcome to ParkinsonvilleA haunting series of scenes recently woke me in the wee hours of the morning. I vividly recalled visiting a strange new town, but the details were fuzzy. I took...reactions5comments
Research Study Opportunity: Sleep & Quality of LifeThis research study is now closed. The University of Mississippi invites all those living with Parkinson's disease to participate in a research study. Researchers want to know about how individuals...reactionscomments
Radical Acceptance of My Life's ChallengesI have become a radical in my elder years! Over many years, I have embraced radical acceptance slowly, although I did not know its name. Radical acceptance is when you...reactions2comments
Parkinson's: A Malicious DiseaseIt’s easy to hate a disease like Parkinson’s. There are few things that seem as malicious and designed to cause destruction. I’m not typically someone who sees the world in...reactions14comments
Life Transitions & Parkinson's: When Not Happening is HappeningAccording to Nancy Schlossberg, an educator on life transitions, "non-events" occur in ways that affect us just as much as actual events. There is nothing nefarious about this revelation though;...reactions5comments
Reflecting on 2020: Any Silver Linings?Over the past year, I’ve heard many people comment on how difficult and challenging 2020, the year of the pandemic, has been for everyone and how they wished the year...reactions1comment
It’s Not Just Your Voice: Parkinson's Communication BarriersWe communicate with more than our voices. When our voices, vision, hearing, and facial expressions are threatened, we do not want to be seen as "different" by others. Parkinson’s disease (PD) can cause...reactions2comments
Parkinson's Status Check: The Ugly Truth of a DiagnosisFor those of us in the advocacy game, we expect to be contacted when someone's status changes to mirror our Parkinson's diagnosis. In my four years of being medically-labeled with...reactions8comments
Top Parkinson's Reads of 2020: A Year in ReviewAs the end of the year approaches, we wanted to take a moment to look back and share some of the most-read articles from 2020. Many community members were interested...reactions1comment
Are Your Skin Problems Related to Parkinson’s?Over the years, I have often referred to myself as a Dermatology Poster Child. My skin has been sensitive since day 1 and has gotten progressively worse as I get...reactions6comments
What Do You Know About Parkinson's Disease? Take Our Quiz!While Parkinson’s disease (PD) can affect everyone differently, there is common ground among community members. To find out more about how people with PD cope with their condition, manage their...reactionscomments
Parkinson's Fatigue & NarcolepsyFor as long as I can remember, I've been prone to long sleeps. As a kid, I could hit the 10-12 hour point easily. In my early thirties, Friday night...reactionscomments
Managing Parkinson’s Comorbidities: Routine Doctor VisitsOn August 26th, I celebrated my 49th journey around the sun. The next day, I went for a maintenance / road-worthiness physical, which was my first in a couple of...reactions12comments
The Parkinson’s Symptoms Nobody Talks About: Results From Our SurveyParkinson’s disease (PD) is a neurological disorder that affects a person’s ability to move. Most people associate PD with movement or motor symptoms like tremors, shaking, muscle stiffness, and poor...reactions44comments
What Sleep Issues Do You Experience? Results From Our SurveySleep plays an important role in overall health and well-being. Unfortunately, it is common for people with Parkinson’s disease (PD) to experience a variety of sleep problems. These issues can...reactions4comments
On Traveling When Your Dad Has Parkinson'sI’ve always had the kind of soul that’s hungry to see new beginnings - a gentle sunrise over the Smoky Mountains or pieces of coral reef emerging from the Costa...reactions2comments
Parkinson's & the Circadian Role of MelatoninIt’s the time of year when we begin to feel some distinction in our bodies that relate to the change in light. Our body clocks, more formally known as our...reactions2comments
Community Views: The Painful Truth About Parkinson’sParkinson’s disease is often a daily struggle, both for the person with the diagnosis and the loved ones providing care. It can be unpredictable, with life-altering symptoms that can feel...reactions4comments
Lauren Simmons' Extraordinary Life with Parkinson'sWe have all read or heard inspiring stories of exceptional people with Parkinson's. Running marathons, riding bikes for great distances, or climbing mountains are all fantastic feats when you have...reactions5comments