Caregiver Resources: Where Caregivers Can Go for SupportMillions of people are caring for loved ones who are sick or disabled. In fact, some 25 percent of U.S. adults report providing care or assistance to someone with a...reactionscomments
How To Get Through Days When You Can't Fight Parkinson's AnymoreWe have all been there. After a bad night you give up and drag yourself out of bed. It’s 4:30am. Yes, 4:30! You are restless and you just have to...reactions2comments
Building Connections & Parkinson's: Overcoming IsolationAfter a decade in Parkinson's advocacy, the most common hurdle reported by people with young-onset Parkinson's disease (YOPD) is not what you might think. It happens to be isolation. People...reactions2comments
How To Stay Positive With Parkinson’s DiseaseMany people living with Parkinson’s disease (PD) say symptoms like fatigue, cognitive changes, and pain make navigating day-to-day life difficult. These and other challenging symptoms often impact physical, mental, emotional...reactions9comments
Writing a Biography: These Last 4 YearsWhen you stop and think about it, 4 years is a long time. That’s 1,061 days since diagnosis to scribble in my biography. During this time, Parkinson’s has caused me...reactions3comments
The Link Between COVID-19 & Parkinson's DiseaseOne wonderful personality trait of my Indian father’s is that he typically does not do what he does not want to do. Managing this with his Parkinson’s has not been...reactionscomments
Couples and Parkinson's: Not Fight(ing) ClubThe not so wonderful thing about Parkinson's or any cruddy life situation is that it tests not only the person it happens to, but its debris lands on anyone within...reactions6comments
My Father Has Parkinson's: Living with Regret & GuiltFrom a young age, my father had health issues. His first heart attack was the year I was born. Then there was the second and third and fourth - on...reactionscomments
Community Views: How Does Being a Caregiver Impact Your Life?Most of us know what a caregiver does, but not everyone fully understands what it is like to be a caregiver until they are in that role. To start a...reactionscomments
Beyond Exhaustion: How Life Changes with FatigueFatigue: It’s not “just being tired”, and it’s an experience that individuals living with a chronic health condition know all too well. Fatigue can impact every aspect of daily life...reactions4comments
Living with Apathy: "Because I Just Don't Want To!"I have heard a lot of children say, “I don’t want to,” when asked to eat their vegetables or pick up their toys. The follow-up question, “Why don’t you want...reactions3comments
Making Palliative Care Standard Practice For People with Parkinson’s DiseaseA new program launched by the Parkinson’s Foundation will help to make palliative care a standard practice across all Centers of Excellence in the United States. These are medical centers...reactionscomments
Compromised Immunities & Pandemics: Best EnemiesWhen I was a kid and I would listen to stories of medieval pandemics, I would always envision the world under continuously gray skies. Beneath the obscuring skies, all life...reactionscomments
The 2020 Support Group Drought: To Meet or Not to MeetOur local Parkinson's support group has been on my mind more than usual of late. We have not been meeting as a large group due to social distancing guidelines and...reactions5comments
What Is It Really Like to Be a Caregiver? Results of the 2020 Caregiving In America SurveyWhen faced with a chronic health condition like Parkinson's disease, many people rely on the help and support of a caregiver. In many ways, the family members, partners, and friends...reactionscomments
Others May Not “See” It. But I Feel It.During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go unnoticed despite the major impact your illness has...reactionscomments
COVID-19 Induced Apathy: Is That a Thing?How many weeks has it been now? Months? I have totally lost track. It must be at least 6 months or more. At first, it was strangely energizing. We had...reactionscomments
World Hospice & Palliative Care Day 2020: Voices from the CommunityEach year, World Hospice and Palliative Care Day is observed in October. This year, October 10 will mark the day to celebrate and support hospice and palliative care around the...reactionscomments
COVID-19 and Flu: Similarities, Differences, and How to Protect YourselfAs the coronavirus and flu season collide, this upcoming fall and winter will be like none the world has ever seen. Here in the United States, it is important to...reactionscomments
Dealing with Apathy From My Loved One With Parkinson'sWhen my father first started feeling the symptoms of Parkinson’s disease (PD), we, as his family, had no choice but to feel for him. There was no cheering him up...reactions1comment