Miss IndependentI’m stuck. I’m standing outside my hotel room. The door is not locked. And I have my right hand on the doorknob. To get in, all I need is to...reactions5comments
Making Simple Home AdjustmentsWatching my Dad’s difficulties shift and change with the progression of Parkinson’s disease (PD) is heartbreaking. He was once the strongest person in the house, lifting his kids with little...reactions6comments
Parkinson's Hijacked Our PlansShortly after my Parkinson’s diagnosis, I heard the initial stage of the disease called the honeymoon phase. I dismissed it as a simple referral to the time period immediately following...reactions4comments
Funeral Plans and All That New Orleans JazzRecently, my wife and I went to a funeral for someone close to us who died way too early. I’m not sure what an appropriate age is to have lived...reactions3comments
Research Study Opportunity: Activities of Daily LivingThe Department of Occupational Therapy at the University of South Alabama invites those living with Parkinson’s disease to participate in a research study. Researchers want to know how Parkinson's disease...reactionscomments
When the Person with Parkinson's Comforts the Caregiver“I’m okay, Mary Beth.” My Dad says between sips of soda. We’re sitting in a local diner, waiting for our food to arrive on a crisp fall day. His words...reactions5comments
Getting Started: Telehealth for Veterans with Parkinson'sAn estimated 80,000 U.S. veterans live with Parkinson’s disease (PD). Researchers believe some events that can happen while serving, such as brain injuries or exposure to chemicals like Agent Orange...reactions1comment
Expressing Our Memories in Words and SongI come from a family where Alzheimer's is an issue. This fall, it collaborated with COVID to rob another family member of his life. Nearly 3 decades ago, it took...reactions11comments
Dysphagia in Parkinson's DiseaseDysphagia is the medical term used to describe difficulty swallowing. When Parkinson’s disease (PD) affects the muscles in the face, neck, or throat, it can cause dysphagia. More than 80...reactions36comments
Have You Tried Yoga to Help Manage Parkinson's Symptoms?"If you can breathe, you can do yoga." -Christiana Lewis Ulwelling, Yoga Instructor If you have never tried yoga, why would you start now? After all, with Parkinson’s, the thought...reactionscomments
Parkinson's Catharsis: Letting It All OutDuring COVID, it seems that the thing people do the second most is watch television (as a betting man, I’d put surfing the ‘net as number one). Recently, my wife...reactions2comments
PD Pundit: An Interview with Parkinson's Disease - Part 2Our resident artist here at ParkinsonsDisease.net, Peter, created a two-part comic featuring an interview with Parkinson's disease itself. Part 2 focuses on the rising number of people living with Parkinson's.If...reactions3comments
On Loneliness and ObligationWhite powder is falling from the sky, blanketing Eastern Michigan in the cold substance. My sister and I just arrived after a 14-hour road trip, and we’re exhausted. Dad is...reactions2comments
Research Study Opportunity: Mood & Medication AdherenceThe research team at the University of East Anglia (UK) invites those living with Parkinson's disease to participate in a research study. Researchers want to know how feelings of control...reactions1comment
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology...reactions4comments
PD Pundit: An Interview with Parkinson's Disease - Part 1Our resident artist here at ParkinsonsDisease.net, Peter, created a new comic featuring an interview with Parkinson's disease itself taking about the resources for people with Parkinson's. To read the rest...reactions3comments
The Glitch in Our SystemI have an idea that I'm slowly turning into a story. It's called A Glitch in the System. The basic premise: Something is inside the main character's body and brain...reactions2comments
Young-Onset Parkinson's: More Than An Old Person's DiseaseThe young boy with the scooter was moving at 30, no, 35 kilometers and hour. I could feel myself tensing up. We were about to collide. "Careful!" My mother pulled...reactions14comments
The Benefits of Fiber for Parkinson's ConstipationPoop, we all do it! But for people with Parkinson's disease, it may be harder than others. Constipation refers to changes in consistency, ease of passage, volume, weight, and frequency...reactions6comments
What To Do When the Caregiver Becomes IllThe past several weeks have been a harsh reminder of what could happen when the person we depend on the most, our Parkinson's disease caregiver/partner, suddenly becomes ill. My husband...reactions5comments