Stay OptimisticOne of the challenges of writing about Parkinson’s is finding emotional balance while I learn about the symptoms that impact my dad on a daily basis. It’s pretty easy to... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments4 comments
Two Sides of the Parkinson’s ExperienceIn the past I’ve been "blessed?", "burdened?", and "frustrated?" to be a caregiver. Now it is my turn at needing a caregiver. The following is what I’ve learned from both... By Pat LaPointe2 min readBookmark for laterReactions0reactionsComments12 comments
My Mom, My HeroI have written a lot about my dad who is almost 87 years old and has Parkinson’s disease (PD) and dementia. It’s been a long road for my dad (Steve) and... By Suzanne Troy2 min readBookmark for laterReactions0reactionsComments0 comments
Maintaining Interest in Hobbies Post DiagnosisAs an introvert, I find comfort in silence. I recharge my batteries from the depths of my home, where I’m commonly reading books or playing music. I think that my... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments7 comments
Grappling with AngerOrdinarily, I find comfort in the idea that everything happens for a reason. It seems as though certain events have to take place in order to make space for other... By MaryBeth Skylis3 min readBookmark for laterReactions0reactionsComments0 comments
A Slow Vacation with Parkinson’s DiseaseIt’s a sunny summer day in northern Michigan when I walk out onto the back porch. Water bugs wiggle around the coast of Lake Ann while I sip my coffee... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments1 comments
On Dementia and Parkinson’s Disease in My DadIf you’ve gone down the rabbit hole of potential Parkinson’s disease (PD) symptoms, chances are that you’ve encountered dementia. The infamous dementia grabs hold of our faculties, causing changes to... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments6 comments
Caregiver Tips to Manage Sundowning in Parkinson's DementiaAs a certified speech pathologist, I counsel patients with Parkinson's dementia and their families on the symptoms of sundowning. Sundowning is a neuropsychiatric symptom that begins at the time of... By Marc Mitnick2 min readBookmark for laterReactions0reactionsComments9 comments
A Final GoodbyeMy Dear ParkinsonsDisease.net Community, It is with a grave heart that I inform you this is my last article for ParkinsonsDisease.net. While I have thoroughly enjoyed and appreciated writing for... By Juwairiya Syed3 min readBookmark for laterReactions0reactionsComments6 comments
Driving and Deep Brain StimulationThe tires of the van hit the highway’s rumbling strips, ripping at a low pitch. My dad was out of bounds again. We were on our way from the cottage... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments6 comments
Being the Bad Guy: We All Have to Be It NowMy brother got accepted into the University of Southern California. He didn’t expect it to happen and frankly, I couldn’t believe it did. He beat out 70,000 other applicants and... By Juwairiya Syed3 min readBookmark for laterReactions0reactionsComments1 comments
Informative Parkinson’s PodcastsI’m an information addict. Any time I encounter a problem, a question, or an illness, I dive into the bookshelves to see if there are any solutions. Since my Dad... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments1 comments
Chewing on GuiltI'd be lying if I told you that I don't struggle with guilt. Watching your dad cope with Parkinson's disease through a screen seems callous. When we talk on the... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments1 comments
Caregiver Survival Skills From the Wild WestMy husband and I recently went on a trip to Glacier National Park in Montana. We had an amazing time and we were blessed by good weather. We chose to go on... By Suzanne Troy3 min readBookmark for laterReactions0reactionsComments2 comments
My Journey in Therapy Dealing with My Father's Parkinson'sIn September 2020, my father calmly expressed to my mother how depressed he felt as she got ready for work. When my mother called me that morning, she decided to... By Juwairiya Syed3 min readBookmark for laterReactions0reactionsComments4 comments
Confronting MortalityThe tears streamed down my face on a late fall morning in Michigan. I’d just made it to my cousin’s house after being home for a while. And I couldn’t... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments2 comments
Noticing Dad's Facial MaskingI’m scrolling through comments on a Parkinson’s forum when I read a note from a stranger. She says that she struggles with "facial masking" and she hopes that her loved... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments3 comments
Neuropsychological AssessmentA sudden event and worsening neurological symptoms in my father forced me and my family to reach out to a specialized neurologist. This doctor has done extensive research in movement... By Juwairiya Syed3 min readBookmark for laterReactions0reactionsComments0 comments
Medicare and DementiaAfter years spent calling insurance reps, Googling, and talking to health insurance agents, I have finally accepted the truth. Until my father received a diagnosis confirming he has dementia, I... By Juwairiya Syed2 min readBookmark for laterReactions0reactionsComments2 comments
Changes to Dad's BreathingOver the winter months, I went home to see my family. While my dad and I sat in front of the flickering blue television screen, I began to notice something... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments2 comments