Chewing on GuiltI'd be lying if I told you that I don't struggle with guilt. Watching your dad cope with Parkinson's disease through a...reactions1comment
Caregiver Survival Skills From the Wild WestMy husband and I recently went on a trip to Glacier National Park in Montana. We had an amazing time and we were...reactions2comments
My Journey in Therapy Dealing with My Father's Parkinson'sIn September 2020, my father calmly expressed to my mother how depressed he felt as she got ready for work. When my...reactions4comments
Confronting MortalityThe tears streamed down my face on a late fall morning in Michigan. I’d just made it to my cousin’s house after...reactions2comments
Coping With Double LossBeing a caregiver for a loved one with Parkinson’s can be filled with meaning, challenge, and eventually heartbreak. In listening to my...reactionscomments
Noticing Dad's Facial MaskingI’m scrolling through comments on a Parkinson’s forum when I read a note from a stranger. She says that she struggles with...reactions3comments
Neuropsychological AssessmentA sudden event and worsening neurological symptoms in my father forced me and my family to reach out to a specialized neurologist...reactionscomments
Medicare and DementiaAfter years spent calling insurance reps, Googling, and talking to health insurance agents, I have finally accepted the truth. Until my father...reactions2comments
Changes to Dad's BreathingOver the winter months, I went home to see my family. While my dad and I sat in front of the flickering...reactions2comments
Grad School and My Father's CareWhen I decided to apply for graduate school, I chose the best programs. I only wanted programs that were top 10 in...reactions1comment
Structure, Structure, StructureSometimes, when I decide to act my age, I go off routine. I get wild and have my coffee at 11 AM...reactions3comments
A Special Thanks to My Parkinson's Life Coach and AdvisorThank goodness, I have a Parkinson's life coach (PLC) and advisor. This individual is the best PLC and advisor to lead the Team...reactions15comments
Mom’s Shifting Role as It Relates Parkinson’sI grew up in a 2 parent home. My dad worked as a realtor. My mom occasionally taught piano lessons and raised...reactions2comments
Wheelchairs and Bedside CommodesIn the most recent conversation we had with my father’s neurologist, he was able to look back at the progression of my...reactions1comment
Using Avoidance to Cope with Parkinson's DiseaseSometimes I wonder if my coping mechanism is avoidant. I have the travel bug and I can commonly be found in a...reactions5comments
Making “I Love You” a Habitual PhraseIt’s 9:00 AM when my phone lights up. “Good Morning, Mary Beth!!!!!!!” My dad’s text message is enthusiastic and seemingly filled with...reactionscomments
The Power of Your Personal StoryOver eighteen years ago, I attended my first Parkinson’s Action Network (PAN) forum in Washington, DC and I became an advocate for...reactions1comment
Community Views: Top Tools for Caring for Someone With Parkinson’sLearning how to care for a loved one with Parkinson’s is not something that happens overnight. Most people in the community learned...reactions2comments
When the Person with Parkinson's Comforts the Caregiver“I’m okay, Mary Beth.” My Dad says between sips of soda. We’re sitting in a local diner, waiting for our food to...reactions5comments
What To Do When the Caregiver Becomes IllThe past several weeks have been a harsh reminder of what could happen when the person we depend on the most, our...reactions5comments
