Grad School and My Father's CareWhen I decided to apply for graduate school, I chose the best programs. I only wanted programs that were top 10 in my field. It just so happened, none of...Reactions0reactionsComments1 comments
Structure, Structure, StructureSometimes, when I decide to act my age, I go off routine. I get wild and have my coffee at 11 AM instead of 10:30. Or I don’t make lunch...Reactions0reactionsComments3 comments
A Special Thanks to My Parkinson's Life Coach and AdvisorThank goodness, I have a Parkinson's life coach (PLC) and advisor. This individual is the best PLC and advisor to lead the Team "Marc." My life coach is better than any...Reactions0reactionsComments15 comments
Mom’s Shifting Role as It Relates Parkinson’sI grew up in a 2 parent home. My dad worked as a realtor. My mom occasionally taught piano lessons and raised 6 kids. For most of my early years...Reactions0reactionsComments2 comments
Wheelchairs and Bedside CommodesIn the most recent conversation we had with my father’s neurologist, he was able to look back at the progression of my father’s Parkinson’s disease (PD) and guesstimate what the...Reactions0reactionsComments1 comments
Using Avoidance to Cope with Parkinson's DiseaseSometimes I wonder if my coping mechanism is avoidant. I have the travel bug and I can commonly be found in a different location every weekend. I love seeing and...Reactions0reactionsComments5 comments
Making “I Love You” a Habitual PhraseIt’s 9:00 AM when my phone lights up. “Good Morning, Mary Beth!!!!!!!” My dad’s text message is enthusiastic and seemingly filled with joy. “Lol. Morning Dad, I love you.” I...Reactions0reactionsComments0 comments
Caregiver Tips for Managing Parkinson’s Disease DementiaParkinson’s disease (PD) is an illness largely defined by changes in motor control. Early symptoms include tremors, stiffness, and walking/balance problems. As the disease progresses, many will also develop dementia...Reactions0reactionsComments7 comments
Community Views: Top Tools for Caring for Someone With Parkinson’sLearning how to care for a loved one with Parkinson’s is not something that happens overnight. Most people in the community learned how to provide the right level of care...Reactions0reactionsComments2 comments
When the Person with Parkinson's Comforts the Caregiver“I’m okay, Mary Beth.” My Dad says between sips of soda. We’re sitting in a local diner, waiting for our food to arrive on a crisp fall day. His words...Reactions0reactionsComments5 comments
What To Do When the Caregiver Becomes IllThe past several weeks have been a harsh reminder of what could happen when the person we depend on the most, our Parkinson's disease caregiver/partner, suddenly becomes ill. My husband...Reactions0reactionsComments3 comments
Parkinson's: A Malicious DiseaseIt’s easy to hate a disease like Parkinson’s. There are few things that seem as malicious and designed to cause destruction. I’m not typically someone who sees the world in...Reactions0reactionsComments14 comments
On Traveling When Your Dad Has Parkinson'sI’ve always had the kind of soul that’s hungry to see new beginnings - a gentle sunrise over the Smoky Mountains or pieces of coral reef emerging from the Costa...Reactions0reactionsComments2 comments
Caregiver Resources: Where Caregivers Can Go for SupportMillions of people are caring for loved ones who are sick or disabled. In fact, some 25 percent of U.S. adults report providing care or assistance to someone with a...Reactions0reactionsComments0 comments
Community Views: How Does Being a Caregiver Impact Your Life?Most of us know what a caregiver does, but not everyone fully understands what it is like to be a caregiver until they are in that role. To start a...Reactions0reactionsComments0 comments
Dealing with Apathy From My Loved One With Parkinson'sWhen my father first started feeling the symptoms of Parkinson’s disease (PD), we, as his family, had no choice but to feel for him. There was no cheering him up...Reactions0reactionsComments1 comments
Restarting My Self-Care During QuarantineFor the last few months, I have thought about all my fellow care partners often. I'm often wondering how caregivers are coping with these difficult times, being isolated, schedules turned...Reactions0reactionsComments0 comments
Making My Voice Heard Among Parkinson's DoctorsThere are a couple of things about being a 24-year-old girl that are fun. The endless confusion about your direction in life. The not so subtle jokes that it’s all...Reactions0reactionsComments0 comments
Growing Online and Virtual Opportunities for CaregiversI recently participated in an online meeting where staff members of various Parkinson’s organizations were commenting on the forced necessity of moving support, education, and exercise programs online to continue...Reactions0reactionsComments0 comments