Gretchen’s Top 10 Christmas Gifts for Care Partners of People with Parkinson’s“I am a Caregiver… What is YOUR Superpower?” Being a care partner for someone with Parkinson’s is no easy task. As both my husband and myself have Parkinson’s, we have... By Gretchen Church4 min readBookmark for laterReactions 0 reactions Comments0 comments
What Does My Future as a Parkinson's Care Partner Look Like?Life as a caregiver or care partner to someone with Parkinson’s disease (PD) can be tumultuous. PD caregivers may experience fear or uncertainty about the future, or trouble understanding what... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Helpful Hints for Long-Distance CaregivingCaregiving can be challenging when you live in the same area as a loved one, but it can be even trickier if you’re long-distance. Thankfully, social media and communication apps... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Incredibles: Parkinson's Comfort Pets Are Super Heroes TooWhat is it about a furry friend that seems to melt one's troubles away? To me, it's "incredible" to watch; especially when one's troubles include all the symptoms that come along... By AngieHott1 min readBookmark for laterReactions 0 reactions Comments9 comments
Nightmare on Parkinson's StreetFreddy Krueger's frightened teens have nothing to compare with my most recent Nightmare on Parkinson's Street! The disfigured "midnight mangler" who visits unsuspecting teens managed to surreptitiously sneak inside my bedroom... By AngieHott2 min readBookmark for laterReactions 0 reactions Comments2 comments
"Parkie Pets" Are A Parkinson's Patients' BFFWay, way, waaaaay, back in the summer of 2007, my four children came up with the most amazing idea! Their daddy's birthday was coming up soon. As four kids between the ages... By AngieHott3 min readBookmark for laterReactions 0 reactions Comments2 comments
It's Recess! So, Call Your CongressmanRecess! Around my house, Alice Cooper can be heard belting "school's out for summer!" I know you know the song, "School's Out!" But did you also know that is not just... By AngieHott1 min readBookmark for laterReactions 0 reactions Comments2 comments
Parkinson's Disease: A Blessing in Disguise?Blessings. Anytime I hear someone say this word, I can hear my nearly 90 year old pap singing: “Showers of blessings, Showers of blessings we need: Mercy-drops round us are... By AngieHott2 min readBookmark for laterReactions 0 reactions Comments4 comments
Special Thanks to Caregivers and Care PartnersPut simply, we "Parkies" owe our caregivers and care partners a big shout out/mad props for all they do for us. Sometimes, these two words seem mechanical, like we’re just... By Dan Glass3 min readBookmark for laterReactions 0 reactions Comments6 comments
One Moment at a Time: Patience with Managing MedicationsIn this fast-paced, multi-tasking world which we live in, it is sometimes very hard to remember to live one moment at a time. As a care partner, I find myself... By Angela Robb2 min readBookmark for laterReactions 0 reactions Comments0 comments
A Small Town Advocate for A Big Time IssueOpening my mail yesterday from my rural box out here in the sticks, I found quite a surprise! No, it was NOT a snake, although we have had our fair... By AngieHott3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Dad Has Parkinson'sLater this month, our thirteen-year-old son Levi will be traveling with his dad to Washington, DC, for Parkinson's Advocacy Day. Levi LOVES film! In fact, he always narrates the Oscar Awards Ceremony... By AngieHott1 min readBookmark for laterReactions 0 reactions Comments2 comments
Educating Others about Parkinson’sMany of your family and friends may only see you and your loved one with Parkinson’s once or twice a year. These short visits may make it difficult for them to... By Angela Robb2 min readBookmark for laterReactions 0 reactions Comments4 comments
My Year of IntentionsMy husband and I attended a yoga class on New Year’s Eve. Our yoga instructor and friend, Rixie, through yoga, guided us to reflect on 2017 and set intentions for 2018... By Angela Robb2 min readBookmark for laterReactions 0 reactions Comments0 comments
Loving the Man – Not Loving Parkinson’sThe way that my husband Karl and I met was unconventional. It was 1995 and the Internet was just starting to make strides into people’s homes. We met on a... By Angela Robb3 min readBookmark for laterReactions 0 reactions Comments9 comments
How We Cope – Being Care Partners for Each OtherAngela and I have been married for over 21 years. We consider our marriage to be a relationship of mutual care. We prefer the term “care partner” instead of “caregiver”... By Karl Robb1 min readBookmark for laterReactions 0 reactions Comments0 comments
Self-Care for Caregivers: Moving Past the BarriersAs a caregiver or care partner for a loved one with Parkinson’s disease, it’s likely you’ve been educated in the importance of self-care. Perhaps a well-intentioned family member, medical professional... By Brooke Huminski3 min readBookmark for laterReactions 0 reactions Comments8 comments
5 Tips in Caregiving: When a Loved One Refuses CareThese are some of the biggest challenges I have faced as a doctor and caregiver, so I thought perhaps these pearls would help with the frustration many of us struggle... By Maria De Leon2 min readBookmark for laterReactions 0 reactions Comments4 comments
Wearing Many Hats as a Parkinson's Disease CaregiverAs a Parkinson’s disease care partner, I feel that I’m the "wearer of many hats." I find this metaphor perfectly explains the caregiver or care partner’s situation. The unpredictability of... By Angela Robb2 min readBookmark for laterReactions 0 reactions Comments0 comments
How are the Terms Care Partner and Caregiver Different?It is common to find the use of these two terms within the Parkinson’s disease community. However, they are rarely defined. It occurred to me to take time to show... By Angela Robb2 min readBookmark for laterReactions 0 reactions Comments0 comments