Just diagnosed...I have noticed a tremor for about a year. More recently it has become noticeable to others. The Movement center at RI Hospital diagnosed Parkinson’s. I’m a little shocked, but...Reactions0reactionsComments5 comments
FeaturedScared and in denial that I have Parkinson's...When I was diagnosed with Parkinsons I had friends tell me it was not. I am scared because I have had both knees replaced as well as two revisions. The...Reactions0reactionsComments5 repliesAcceptanceCoping
Parkinson's Status Check: The Ugly Truth of a Diagnosis...For those of us in the advocacy game, we expect to be contacted when someone's status changes to mirror our Parkinson's diagnosis. In my four years of being medically-labeled with...Reactions0reactionsComments8 comments
Foundry Worker to Caregiver...I worked 28 years in a foundry while my wife was working in the medical devices facility and was diagnosed with Parkinson's in about 1991. She had a D.B.S. put...Reactions0reactionsComments3 comments
Top Parkinson's Reads of 2020: A Year in Review...As the end of the year approaches, we wanted to take a moment to look back and share some of the most-read articles from 2020. Many community members were interested...Reactions0reactionsComments1 comments
Ups and Downs...I’ve been wanting to share my story for some time, but never actually sat down to give it a go. It’s 2:05 a,m. and my inability to rejoin the sleeping...Reactions0reactionsComments2 comments
Do any of you use amino acid therapy along with other vitamin supplements?...Have just been diagnosed with PD. Current symptoms are right side tremors, walking gate not smooth, and partial lose of smell....Reactions0reactionsComments3 repliesNewly DiagnosedTreatment
That won’t happen to me!...I was diagnosed at roughly 35. I am now 59. My PD has progressed slowly until about 5 yrs ago when my Mom was diagnosed with PD. I was her...Reactions0reactionsComments4 comments
Coping with my Parkinson's disease...I am now 69 years old and still find going to work early a way of living with my disease. I was diagnosed by neurologist about 5 years ago, but...Reactions0reactionsComments2 comments
Are Your Skin Problems Related to Parkinson’s?...Over the years, I have often referred to myself as a Dermatology Poster Child. My skin has been sensitive since day 1 and has gotten progressively worse as I get...Reactions0reactionsComments6 comments
The Psychotic Side of Parkinson's...My husband was diagnosed in 2009. Was on dopamine agonists. Within months developed compulsive behavior (sexual) left me for 3 months, had taken up with another woman. Specialist stopped them...Reactions0reactionsComments1 comments
What Do You Know About Parkinson's Disease? Take Our Quiz!...While Parkinson’s disease (PD) can affect everyone differently, there is common ground among community members. To find out more about how people with PD cope with their condition, manage their...Reactions0reactionsComments0 comments
Parkinson's Fatigue & Narcolepsy...For as long as I can remember, I've been prone to long sleeps. As a kid, I could hit the 10-12 hour point easily. In my early thirties, Friday night...Reactions0reactionsComments0 comments
A Rant, Some Feedback, and Me...I’m in the elderly category, have Parkinson’s and CKD, and, due to coronavirus, have been in deep isolation for over nine months. In an attempt to inject a little humor...Reactions0reactionsComments4 comments
Intoxication from Sinemet?...Hi. First post here. My husband was diagnosed with young onset PD about 5 years ago. He's had his primary symptom - a hand tremor - for about 7 years...Reactions0reactionsComments2 repliesTreatment
Ongoing tightness...I am 38 years old and have been experiencing tightness throughout my body in the past couple of years. It’s started in my right shoulder/trap about 2 years ago. A...Reactions0reactionsComments2 repliesMotor Symptoms
Managing Parkinson’s Comorbidities: Routine Doctor Visits...On August 26th, I celebrated my 49th journey around the sun. The next day, I went for a maintenance / road-worthiness physical, which was my first in a couple of...Reactions0reactionsComments12 comments
The Parkinson’s Symptoms Nobody Talks About: Results From Our Survey...Parkinson’s disease (PD) is a neurological disorder that affects a person’s ability to move. Most people associate PD with movement or motor symptoms like tremors, shaking, muscle stiffness, and poor...Reactions0reactionsComments28 comments
10 years after onset...I was Dx in 2011 I declined alot in first 5 years mostly due to too much drugs I've been self managed 5 yrs now much better than 10 yrs...Reactions0reactionsComments1 repliesMotor Symptoms
What Sleep Issues Do You Experience? Results From Our Survey...Sleep plays an important role in overall health and well-being. Unfortunately, it is common for people with Parkinson’s disease (PD) to experience a variety of sleep problems. These issues can...Reactions0reactionsComments4 comments
