Hope or Hurt: Right to Try LegislationWhen many patients with incurable conditions reach a certain point in their battles, it becomes necessary to find hope in any way possible. It's easy for us to say, "cheer...Reactions0reactionsComments0 comments
Coping With a Loved One's Crisis While Living With Parkinson's DiseaseWorking in an acute care hospital as a medical social worker, it was part of my job to help deliver bad news to patients and their families and help them...Reactions0reactionsComments6 comments
PD Pundit: Parkinson's Symptoms & Side Effects (Part 2)Our resident artist here at ParkinsonsDisease.net, Peter, created a new comic in a four-part series on PD symptoms and side effects. This second installment discusses medication side effects and drug...Reactions0reactionsComments0 comments
Marijuana & Parkinson'sThe use of marijuana to ease many Parkinson's symptoms seems to come up everywhere in our community. At support group meetings and Parkinson’s conferences, it is often the first subject...Reactions0reactionsComments2 comments
Causes & Treatments of Bowel Issues with Parkinson’s DiseaseThey say the gut is the second brain in our bodies because of all the complex neuronal connections it possesses. Furthermore, the latest theory is that PD may have its...Reactions0reactionsComments6 comments
Access to Medications in an Opioid-Crisis EraThe United States is currently in an epidemic that is often referred to as the “opioid crisis.” This has led to a change in the availability and access of opioid-containing...Reactions0reactionsComments0 comments
Current Regulations Around Opioid PrescribingOpioids are medications that have the ability to alleviate pain. They also have other properties that allow them to impact emotions and our sense of pleasure, which can make them...Reactions0reactionsComments0 comments
Parkinson’s and MassageI have had Parkinson’s disease (PD) for 20 years and deep brain stimulation (DBS) for 10 years now. I have finally conceded that there may be symptoms that are not...Reactions0reactionsComments8 comments
Social Security Disability: A Beginners GuideThere are some questions about Social Security Disability Income (SSDI) that I would like to clear up. The first question is: When should I apply or file for SSDI? Although...Reactions0reactionsComments1 comments
The Stigma Around Pain and MedicationsChronic pain on its own can be difficult to manage. Unfortunately, chronic pain and its treatment may also have an accompanying stigma that makes this issue even more frustrating to...Reactions0reactionsComments0 comments
PD Pundit: Parkinson's Symptoms & Side Effects (Part 1)Our resident artist here at ParkinsonsDisease.net, Peter, created a new comic in a four-part series on Parkinson's symptoms and side effects. This first installment discusses the difference between PD symptoms...Reactions0reactionsComments0 comments
Prescription Musical Chairs Part IIIn part one of this two-part series, I was explaining why the high cost of prescription drugs sometimes seems like a game of musical chairs. The Journal of the American...Reactions0reactionsComments0 comments
The Invisibility of Chronic PainMany people with Parkinson's disease can manage their pain using over-the-counter or prescription pain medicines, physical therapy, and exercise. But some people experience “breakthrough” pain. This is pain that cannot...Reactions0reactionsComments0 comments
Gretchen’s Top 10 Christmas Gifts for People with Parkinson’sBack by popular demand is my top 10 gifts for people with Parkinson’s disease! The holidays can be stressful enough without having to try to figure out that perfect gift...Reactions0reactionsComments0 comments
Myths and Facts About Living WillsA living will is known by several other names, including advanced directive, healthcare declaration, medical directive, and many more. There is often confusion about what these words mean and why...Reactions0reactionsComments0 comments
Rock Steady Boxing: Some ChoicesParticipating in Rock Steady Boxing (RSB) is the single most important thing I have done for myself since diagnosis five years ago. I wish I had started the day I...Reactions0reactionsComments0 comments
Parkie Like a Rock Star!In life, there are some people who transcend the nature of what they do to become something greater. By virtue of our deep connection and respect for their thoughts/deeds/attitudes, they...Reactions0reactionsComments1 comments
Parkinson's Anxieties: Loss & ProgressionIn this series, we discuss the causes of anxiety for those facing physical illness and its side effects. Phrases in bold are the words of our community members across various...Reactions0reactionsComments2 comments
5 PD Symptoms Nobody Talks AboutMost people think of Parkinson’s disease (PD) as a neurodegenerative motor disorder. When you picture someone with Parkinson’s you imagine someone with a tremor, slowness of movement and difficulty controlling...Reactions0reactionsComments6 comments
Who Should Be Included in Your Parkinson's Care Team?I heard these words, “you have Parkinson’s” and didn’t have a clue as to what was heading my way. Among other things I learned it takes a team to stay...Reactions0reactionsComments0 comments