Who Am I?I used to have a fairly clear idea of who I am. Always upbeat and involved in my community, my church, and my children’s school, and extracurricular activities. I led... By Thea Destephano2 min readBookmark for laterReactions0reactionsComments0 comments
On Retirement and Parkinson’s DiseaseI came from a nuclear family with Midwestern values and thick American determination. My mom stayed at home for most of my life, while my dad was the breadwinner. Mom... By MaryBeth Skylis3 min readBookmark for laterReactions0reactionsComments2 comments
Who Is the Future of Parkinson's Advocacy?In 2018, I was given the opportunity to write for Health Union. Having previously blogged about my Parkinson’s experience for the previous (almost) 2 years, I felt honored to be... By Dan Glass3 min readBookmark for laterReactions0reactionsComments0 comments
When Is It Time to Use a Walker?The first time my mom suggested that my dad use a walker during his off periods, he rolled his eyes. He wasn't ready to rely on the little 4-wheeled contraption... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments0 comments
Dare to Care about Self-careManaging my Parkinson’s disease is a daily challenge. Often it feels like a burden and a chore. It can feel like having a full-time job (but frustratingly without the paycheck)... By Shamsa3 min readBookmark for laterReactions0reactionsComments5 comments
Rasagiline and Fatigue: A Follow UpIn a previously published article, Posy tried to find out if anyone else thought that perhaps Rasagiline was making them tired. Posy was taking 1 tablet a day first thing... By Posy2 min readBookmark for laterReactions0reactionsComments16 comments
Parkinson’s PauseWhen I was first diagnosed, I totally threw myself into all things Parkinson's related. A zoom support group, an online support group, reading Every Victory Counts (practically in one sitting)... By Thea Destephano2 min readBookmark for laterReactions0reactionsComments1 comments
Up and Down All the Parkinson's DaysEver since I felt my first tremors, there have been a lot of different days of Parkinson’s. Obviously, some days are better than others. Nevertheless, each day is a statement... By Dan Glass3 min readBookmark for laterReactions0reactionsComments3 comments
We Can’t Always Wrap Everything Up in a Nice BowOne thing that often frustrates me about being a writer is that there’s always this expectation that we can wrap the end of the story up with a neat little... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments4 comments
What Can We Do When Fatigue Strikes Suddenly?Posy expects that we all have experienced "hitting a wall." At these times, we desperately crave going back to bed. It may be that we have worked productively all morning... By Posy3 min readBookmark for laterReactions0reactionsComments8 comments
There Is Not Enough Time To Do It AllPosy finds that having Parkinson’s disease (PD) narrows her range of skills. Do you have PD? If so, Posy would like to know how you manage your time and energy to... By Posy1 min readBookmark for laterReactions0reactionsComments11 comments
The Love and Limitations of Levodopa: From a Levodopa JunkieWhat role does levodopa play in my Parkinson’s disease management? If I was a car, levodopa would be my gas. It fuels and powers my broken body in a way... By Shamsa4 min readBookmark for laterReactions0reactionsComments10 comments
Why I Use MyChart and TelemedicineWhen I was first diagnosed with Parkinson's disease in August of 2020, the pandemic had just started, and although MyChart was available through most doctors and hospitals, it was not... By Thea Destephano2 min readBookmark for laterReactions0reactionsComments2 comments
Retired Life in the Presence of Parkinson's DiseaseAfter 3 years of phased retirement, getting mentally and emotionally prepared for the event, retirement happened. And, as Nina Simone sings, "It's a new dawn / It's a new day... By Frank Church4 min readBookmark for laterReactions0reactionsComments4 comments
Parkinson’s Disease Convinced Me It Was Time to RetireTo many people reading this blog post, you may have been dreaming of retirement for much of your adult life. Not me. An old saying goes, "Some people work to... By Frank Church3 min readBookmark for laterReactions0reactionsComments2 comments
An Adjustment for Tremors: Deep Brain StimulationSitting, facing the team of neurological professionals in front of me, I found myself in a conundrum. In all my posts about Parkinson’s, I’ve always been open about the fear... By Dan Glass4 min readBookmark for laterReactions0reactionsComments11 comments
An Adjustment for Tremors: Focused UltrasoundThis all began when my wife turned me on to a procedure called focused ultrasound (FUS). This is similar to deep brain stimulation (DBS), though, in its most important aspect... By Dan Glass4 min readBookmark for laterReactions0reactionsComments7 comments
A Personal Perspective on Anxiety and Parkinson'sTo a person living with Parkinson's disease, anxiety is probably an all too familiar, hideous condition. Posy's story may ring a few bells. Following a serious case of streptococcal pneumonia... By Posy2 min readBookmark for laterReactions0reactionsComments4 comments
Random Musings on Accepting Parkinson’sI have said I do not, and will not, accept Parkinson’s disease (PD). I do not deny that I have it. I see doctors and take medications. But acceptance, as... By Lorraine Wilson3 min readBookmark for laterReactions0reactionsComments26 comments
My Problem with Parkinson's Disease and Spatial AwarenessWe recently visited Jacksonville Beach, Florida, the home of The Tournament Players Club Sawgrass golf course (TPC Sawgrass) and the host of the Players Golf Tournament on the Professional Golf... By Frank Church3 min readBookmark for laterReactions0reactionsComments8 comments