Hiding / Not Hiding with Parkinson's DiseaseIn the world of disabilities, one of the top “don’t say this to me” statements is “but you don’t look sick.” In what it can infer (quit your whining, pull...Reactions0reactionsComments7 comments
Having a Strategy to Help Manage Chronic IllnessIn no way do I reduce the severity of chronic illness to a game or even a puzzle, but they all require a plan and a strategic perspective. Without an...Reactions0reactionsComments1 comments
Filling a Need: Resources for Parkinson's Patients in Orange County, CAYou have just been diagnosed. Now what? Your doctor gives you good medical advice. But there is much more to be learned. Where do you start? Many feel it is...Reactions0reactionsComments1 comments
Accepting Help: Putting Aside Pride“I don’t need help from strangers coming into my home!” I’ve actually felt this way before and made excuses to justify those feelings. If you or a loved one “necessitates”...Reactions0reactionsComments0 comments
Degrees of Parkinson's Pain"What is pain like for you?" people often ask me in many different ways. For instance, someone will wonder, "Do your Parkinson’s tremors hurt?" They're annoying, but not painful. Sometimes...Reactions0reactionsComments5 comments
Parkinson's Anxieties: Financial StressIn this series, we discuss causes of anxiety for those facing physical illness, like Parkinson's disease, and its side effects. Phrases in quotes are the words of our community members...Reactions0reactionsComments1 comments
How I Deal with Chronic Pain in Parkinson'sA large number of aging adults (65+ years of age) and many of us with Parkinson's are dealing with chronic pain. However, chronic pain is not a mandatory part of...Reactions0reactionsComments5 comments
What Not to Say to Someone with Parkinson’s DiseaseWe all do it—we all say that thing, putting our foot in our mouths, and then immediately regret it. We tend to do it more often when we don’t know...Reactions0reactionsComments14 comments
Taking an Active Role in Your HealthFor some patients, taking an active role in your health and being more involved in your healthcare team can be challenging. Some individuals may feel overwhelmed by all of the...Reactions0reactionsComments2 comments
I Can’t Hear My Spouse with PD - What Can I Do?Recently, in a weekend retreat with both patients and caregivers the two biggest complaints I heard from both parties were 1) my significant other gets mad at me because I...Reactions0reactionsComments2 comments
5 Things Every Person With Parkinson’s Should AvoidEscalators are great modes of getting around for those of us without balance issues, those of us who don’t trip, and any neurological patient looking to face severe consequences. Broken...Reactions0reactionsComments0 comments
4 Common Types of Leg Pain in Parkinson'sOne of the biggest complaints I hear from people with Parkinson's disease (PD) is severe leg pain. As a fellow, if I had heard someone complain of pain in their...Reactions0reactionsComments12 comments
Using Compassion to Cope with Parkinson's DiseaseLiving with a chronic and progressive illness such as Parkinson’s disease can result in mental health challenges such as depression and anxiety. Given the physical, emotional and spiritual challenges of...Reactions0reactionsComments7 comments
Neurological Baseline Test: My Results (Part 2)After taking the Weschler Individual Achievement Test, it took eight weeks to get my results since they had a lot of information to go through. From a 2-hour history of...Reactions0reactionsComments0 comments
Life with Parkinson’sIn the presence of Parkinson’s, we must have courage, the strength of character, and a powerful belief system. Frequently, I’ve portrayed our struggle with Parkinson’s as a battle. Maybe typecasting...Reactions0reactionsComments10 comments
Parkinson's Anxieties: Relationships & FamilyIn this series, we discuss causes of anxiety for those facing physical illness and its side effects. Phrases in bold are the words of our community members across various conditions...Reactions0reactionsComments0 comments
Vascular Parkinson's and George HW BushSaturday, December 1st I woke up early. Because my PD doesn't let me sleep in the way I would like, I decided to catch up on the hot baseball trade...Reactions0reactionsComments0 comments
IndividualityWhy are there so many different types of purses, wallets, knives, pens, shoes, watches, socks, pants, shirts, cars, and so much more to choose from when just one of the...Reactions0reactionsComments2 comments
New Inspiration for the New YearHappy New Year! If you live with a chronic disease like Parkinson’s, you may know the difficulty in being inspired. Especially if you are vulnerable like me to all the...Reactions0reactionsComments4 comments
Your Treatment Journey: Results from a Recent SurveyEvery person with Parkinson's disease (PD) has a unique experience with all aspects of the condition. From time at diagnosis, symptoms experienced, condition progression, and more, no 2 people with...Reactions0reactionsComments0 comments