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Read conversations, start a discussion, and connect with others about Parkinson's disease.

DBS

I'm a 75 year old man, in Feb. of 2013 I had my first DBS implant,(for the left side) to control severe tremor, I had it done at the Cleveland...

How do you deal with involuntary movement above the waist?

My dyskinesia consists of my upper body swaying back and forth, my head moving around, and my hands in fairly constant motion. This can continue for half an hour or...

Has any member had a kidney transplant and now has PD?

I had a kidney transplant in 2014 and now have been diagnosed with PD. I have not exercised in a long while and m starting PT . For a long...

Can anyone recommend easy reading novels, romance/mystery, for people with stage 4 Parkinson's

My mother use to love to read. We swapped books all the time. Now her level of concentration has taken a downward spin. Can someone recommend an author(s) that writes...

Diet - ‘Off Times’ - Weight loss

My friend has non-tremor PD. He is 79 and has been on medication regimen for over 1 year. Neurologist recommended altering diet to avoid proteins causing Off time too soon...

Caregiver for husband

Hi I would like to chat with other care givers, My husband sleeps a lot and when he walks loses his balance so afraid he will fall...

Side effects on sinemet

My dads 79 and has had PD for 7 years. Probably stage 3/4. Has tried different meds but now on 2 sinemet plus(25mg) tablets 3 times a day. After he...

How to tell how advanced?

My wife was diagnosed in 2018 but more likely has had PD for ten to twenty years misdiagnosed as everything else. They now have her on Sinemet 25-100 7xday, Sinemet...

Has anyone had success with occupational therapy or anything for worsening handwriting?

Revealing your PD diagnosis at work

Hi everyone! I would love to solicit your thoughts on revealing your PD diagnosis at work? I have been advised by my neurologist, family and friends to NOT reveal it...

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