Helping Myself

Having read the article about 'new me' I tried posting below it but it kept getting cut, maybe there's a technical prob.

More than tremor

As mentioned before we have no support system and it's unlikely there will be resources to even think of it. I wish to emphasize that our medical practitioners are excellent and caring but there's nothing more they can give.

I now have a pack of wolves around me but am not sure if they know about my difficulties. I try to be jolly in company even if I don't feel so. I want my wolves to know that PD is just not a tremor. Firstly, There's a lot of emotional upheaval within us. Uncertainty/fear of the future. I have big problems with sleep. It's maybe the medication or the combination of medication but I get very little sleep 3-4 hours a night. Result is fatigue!

Educating others

I also have cognitive issues or fears of it - memory loss. We also have pain, muscle pain, real pain that shoots through the body and these can't be spoken of all the time (my feel) cos then you become a bore.

Now I have told my wolves enough and I know they will be more caring in time to come and I also sincerely hope they will be caring if they should meet another PD.