Seriously Parkinson's?!I remember when I was younger I’d often have moments where ridiculous situations would unfold around me. And I’d be standing there shaking my head looking around for the Director...Reactions0reactionsComments2 comments
My Father, Khader: Making Sense of His Decreased AppetiteI have this memory from about two years ago, before my father was officially diagnosed. My mother was running late to work and was rushing out the door. But before...Reactions0reactionsComments0 comments
Healthcare Obstacles & the LGBTQ+ CommunityEditor’s Note: LGBTQ+ stands for people who identify as lesbian, gay, bisexual, transgender, or queer. To learn more about gender identity, check out the interactive website The Genderbread Person. Have...Reactions0reactionsComments1 comments
The Power of LanguageA rose by any other name would smell as sweet or, Parkinson’s by any other name would still stink. The power of language is certain; words can either bolster or...Reactions0reactionsComments2 comments
Secrets, Fears, and Vulnerabilities with Parkinson's: Part 2In late winter / early spring of 2018, after consecutive bouts of respiratory distress that brought on physicians’ concerns of aspiration pneumonia, I quietly reached a point of “no more...Reactions0reactionsComments0 comments
Pushing Past the NoiseThere is an ear-piercing noise that occurs when you are living with a chronic illness, especially Parkinson’s disease (PD). This sound inescapably overwhelms your soul, consumes and stifles your creativity...Reactions0reactionsComments1 comments
The Variability of Parkinson’s: What to Expect and How to Manage SymptomsParkinson’s disease (PD) is a progressive disease of the brain. In healthy brains, cells called neurons make a chemical called dopamine. Dopamine helps coordinate movement. People with PD have less...Reactions0reactionsComments4 comments
The Language of Parkinson's: What To Say vs. What Not To SayWhen my Nan turned 90, I wrote in her card that I was grateful for inheriting her stubborn streak. Some of you might be thinking that’s a pretty insulting thing...Reactions0reactionsComments1 comments
Getting the Most From Your Parkinson's MedicationMost of us who live with a chronic illness like Parkinson’s know firsthand what a struggle it is to find the right combination of medication. It seems once we do...Reactions0reactionsComments0 comments
Community Views Around Staying Positive: What Parkinson’s Cannot Take From MeSadness, anger, fear. When someone hears for the first time that they have Parkinson’s, it is natural to feel down. Any disease that affects quality of life could easily lead...Reactions0reactionsComments0 comments
Providing Spousal Support When Your Loved One Has Parkinson'sI have this idea - a conspiracy theory really - that in the 60s and the 70s, infomercials were put out telling people, nay, warning people, about the terrible effects...Reactions0reactionsComments4 comments
Feeling a Loss of Purpose With Parkinson's DiseaseAs I was flying back to New York from visiting my parents in Dallas, I watched Netflix’s The Crown. The show, while painstakingly dull to some, provides serious insight into...Reactions0reactionsComments3 comments
Interview with Dr. Ray Dorsey: Ending Parkinson's DiseaseDr. Ray Dorsey is the David M. Levy Professor of Neurology and Director of the Center for Health + Technology at the University of Rochester. Through creative use of technology...Reactions0reactionsComments11 comments
Common Questions From Caregivers About Parkinson'sTaking on the role of caregiver for anyone can be daunting, especially when it is someone you love. This is true, whether you chose the role or just had it...Reactions0reactionsComments0 comments
Is Exposure to Antibiotics Linked to an Increased Risk of Parkinson's?A 2019 study published in the scientific journal Movement Disorders suggests that heavy antibiotic use may be linked to the development of Parkinson's disease (PD). The study reviewed past medical...Reactions0reactionsComments0 comments
What Keeps Me Motivated While Living with Parkinson’s?“You can keep going long after you think you can’t.” - Heidi Reynolds, Founder Start Living Today PD I am often asked how I can keep a good attitude and...Reactions0reactionsComments4 comments
Tips for Staying Independent & Living Alone with Parkinson'sPeople often seem surprised that I live alone 6 years into Parkinson's. I actually find it easier than living with someone as you can be tired or quiet without having...Reactions0reactionsComments0 comments
FDA Approved Diagnostic Tool for Parkinson’s: Fluorodopa F 18Fluorodopa F 18 is a new tool for diagnosing Parkinson’s disease (PD). It helps make clearer pictures of nerve cells during brain scans. The new drug was developed at The...Reactions0reactionsComments0 comments
New Year, New Approaches: My Intentions for This YearI like to start the new year by embracing new approaches instead of making resolutions. So, here are some approaches I am trying, as I begin a new year: I...Reactions0reactionsComments0 comments
Do Yourself a Favor: Be Kind!I don’t know about your experience with Parkinson’s, but I can tell you that I occasionally wonder if I am concentrating too much on myself. While it is important to...Reactions0reactionsComments1 comments