My Father, Khader: Making Sense of His Decreased AppetiteI have this memory from about two years ago, before my father was officially diagnosed. My mother was running late to work and was rushing out the door. But before...Reactions0reactionsComments0 comments
The Power of LanguageA rose by any other name would smell as sweet or, Parkinson’s by any other name would still stink. The power of language is certain; words can either bolster or...Reactions0reactionsComments2 comments
Secrets, Fears, and Vulnerabilities with Parkinson's: Part 2In late winter / early spring of 2018, after consecutive bouts of respiratory distress that brought on physicians’ concerns of aspiration pneumonia, I quietly reached a point of “no more...Reactions0reactionsComments0 comments
Pushing Past the NoiseThere is an ear-piercing noise that occurs when you are living with a chronic illness, especially Parkinson’s disease (PD). This sound inescapably overwhelms your soul, consumes and stifles your creativity...Reactions0reactionsComments1 comments
The Variability of Parkinson’s: What to Expect and How to Manage SymptomsParkinson’s disease (PD) is a progressive disease of the brain. In healthy brains, cells called neurons make a chemical called dopamine. Dopamine helps coordinate movement. People with PD have less...Reactions0reactionsComments4 comments
The Language of Parkinson's: What To Say vs. What Not To SayWhen my Nan turned 90, I wrote in her card that I was grateful for inheriting her stubborn streak. Some of you might be thinking that’s a pretty insulting thing...Reactions0reactionsComments1 comments
Getting the Most From Your Parkinson's MedicationMost of us who live with a chronic illness like Parkinson’s know firsthand what a struggle it is to find the right combination of medication. It seems once we do...Reactions0reactionsComments0 comments
Community Views Around Staying Positive: What Parkinson’s Cannot Take From MeSadness, anger, fear. When someone hears for the first time that they have Parkinson’s, it is natural to feel down. Any disease that affects quality of life could easily lead...Reactions0reactionsComments0 comments
Feeling a Loss of Purpose With Parkinson's DiseaseAs I was flying back to New York from visiting my parents in Dallas, I watched Netflix’s The Crown. The show, while painstakingly dull to some, provides serious insight into...Reactions0reactionsComments3 comments
What Keeps Me Motivated While Living with Parkinson’s?“You can keep going long after you think you can’t.” - Heidi Reynolds, Founder Start Living Today PD I am often asked how I can keep a good attitude and...Reactions0reactionsComments4 comments
Tips for Staying Independent & Living Alone with Parkinson'sPeople often seem surprised that I live alone 6 years into Parkinson's. I actually find it easier than living with someone as you can be tired or quiet without having...Reactions0reactionsComments0 comments
Do Yourself a Favor: Be Kind!I don’t know about your experience with Parkinson’s, but I can tell you that I occasionally wonder if I am concentrating too much on myself. While it is important to...Reactions0reactionsComments1 comments
Worrying About Parkinson's: What Keeps Me Awake At Night?I often worry about my Parkinson’s. There are things that sit deep inside my brain that whenever I’m feeling low, tired, or when I’m lying awake at night - that's...Reactions0reactionsComments5 comments
My Father, Khader: Figuring Out His Health Insurance PlanFor the past 3 months, there has been one thing consistently on my to-do list - figure out my father’s health insurance plan. Mostly, figure out how to get him...Reactions0reactionsComments1 comments
The Post-Holiday Blues: Finding Meaning with Parkinson'sWith the holiday season behind us, we can be more susceptible to feeling down, blue, even depressed. It’s easy to understand why. For weeks, we devoted energy to seasonal celebrations...Reactions0reactionsComments0 comments
Secrets, Fears, & Vulnerabilities with Parkinson's: Part 1When my wife and I go out for date night, we tend to see a wide variety of comedy shows. Our favorite show that we have seen is Bert Kreischer...Reactions0reactionsComments2 comments
My Father, Khader, & His Impulse Control IssuesIn about one month, my father’s neurologist will have my father go through his third MRI and confirm my father has Parkinson’s Plus - which I am not too convinced...Reactions0reactionsComments4 comments
Demystifying Parkinson's Hallucinations: When to Seek Medical AttentionThe word "hallucination" can evoke as much or greater fear than the word "dyskenesia" among those of us with Parkinson’s disease (PD). The mere mention seems almost taboo for fear...Reactions0reactionsComments5 comments
Exercise 101: Introducing the FITT PrincipleI hope you know about the many benefits of regular exercise, especially for those living with chronic conditions like Parkinson's disease (PD). In case you don't, this information is especially...Reactions0reactionsComments0 comments
Community Views: What I Took for Granted Before My Parkinson’s DiagnosisParkinson’s can be such a challenging diagnosis to accept because it can affect nearly every facet of your physical everyday life. This, in turn, can easily affect mood. For many...Reactions0reactionsComments0 comments