The Glitch in Our SystemI have an idea that I'm slowly turning into a story. It's called A Glitch in the System. The basic premise: Something is inside the main character's body and brain...Reactions0reactionsComments2 comments
Young-Onset Parkinson's: More Than An Old Person's DiseaseThe young boy with the scooter was moving at 30, no, 35 kilometers and hour. I could feel myself tensing up. We were about to collide. "Careful!" My mother pulled...Reactions0reactionsComments14 comments
The Benefits of Fiber for Parkinson's ConstipationPoop, we all do it! But for people with Parkinson's disease, it may be harder than others. Constipation refers to changes in consistency, ease of passage, volume, weight, and frequency...Reactions0reactionsComments6 comments
Welcome to ParkinsonvilleA haunting series of scenes recently woke me in the wee hours of the morning. I vividly recalled visiting a strange new town, but the details were fuzzy. I took...Reactions0reactionsComments5 comments
Research Study Opportunity: Sleep & Quality of LifeThis research study is now closed. The University of Mississippi invites all those living with Parkinson's disease to participate in a research study. Researchers want to know about how individuals...Reactions0reactionsComments0 comments
Radical Acceptance of My Life's ChallengesI have become a radical in my elder years! Over many years, I have embraced radical acceptance slowly, although I did not know its name. Radical acceptance is when you...Reactions0reactionsComments2 comments
Life Transitions & Parkinson's: When Not Happening is HappeningAccording to Nancy Schlossberg, an educator on life transitions, "non-events" occur in ways that affect us just as much as actual events. There is nothing nefarious about this revelation though;...Reactions0reactionsComments5 comments
Reflecting on 2020: Any Silver Linings?Over the past year, I’ve heard many people comment on how difficult and challenging 2020, the year of the pandemic, has been for everyone and how they wished the year...Reactions0reactionsComments1 comments
It’s Not Just Your Voice: Parkinson's Communication BarriersWe communicate with more than our voices. When our voices, vision, hearing, and facial expressions are threatened, we do not want to be seen as "different" by others. Parkinson’s disease (PD) can cause...Reactions0reactionsComments2 comments
Parkinson's Status Check: The Ugly Truth of a DiagnosisFor those of us in the advocacy game, we expect to be contacted when someone's status changes to mirror our Parkinson's diagnosis. In my four years of being medically-labeled with...Reactions0reactionsComments8 comments
Top Parkinson's Reads of 2020: A Year in ReviewAs the end of the year approaches, we wanted to take a moment to look back and share some of the most-read articles from 2020. Many community members were interested...Reactions0reactionsComments1 comments
Are Your Skin Problems Related to Parkinson’s?Over the years, I have often referred to myself as a Dermatology Poster Child. My skin has been sensitive since day 1 and has gotten progressively worse as I get...Reactions0reactionsComments6 comments
What Do You Know About Parkinson's Disease? Take Our Quiz!While Parkinson’s disease (PD) can affect everyone differently, there is common ground among community members. To find out more about how people with PD cope with their condition, manage their...Reactions0reactionsComments0 comments
Parkinson's Fatigue & NarcolepsyFor as long as I can remember, I've been prone to long sleeps. As a kid, I could hit the 10-12 hour point easily. In my early thirties, Friday night...Reactions0reactionsComments0 comments
Managing Parkinson’s Comorbidities: Routine Doctor VisitsOn August 26th, I celebrated my 49th journey around the sun. The next day, I went for a maintenance / road-worthiness physical, which was my first in a couple of...Reactions0reactionsComments12 comments
The Parkinson’s Symptoms Nobody Talks About: Results From Our SurveyParkinson’s disease (PD) is a neurological disorder that affects a person’s ability to move. Most people associate PD with movement or motor symptoms like tremors, shaking, muscle stiffness, and poor...Reactions0reactionsComments30 comments
Community Views: The Painful Truth About Parkinson’sParkinson’s disease is often a daily struggle, both for the person with the diagnosis and the loved ones providing care. It can be unpredictable, with life-altering symptoms that can feel...Reactions0reactionsComments4 comments
Lauren Simmons' Extraordinary Life with Parkinson'sWe have all read or heard inspiring stories of exceptional people with Parkinson's. Running marathons, riding bikes for great distances, or climbing mountains are all fantastic feats when you have...Reactions0reactionsComments5 comments
How To Get Through Days When You Can't Fight Parkinson's AnymoreWe have all been there. After a bad night you give up and drag yourself out of bed. It’s 4:30am. Yes, 4:30! You are restless and you just have to...Reactions0reactionsComments2 comments
Building Connections & Parkinson's: Overcoming IsolationAfter a decade in Parkinson's advocacy, the most common hurdle reported by people with young-onset Parkinson's disease (YOPD) is not what you might think. It happens to be isolation. People...Reactions0reactionsComments2 comments