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Parking sons with Dementia

Does any one have this combination as is my wife's case.

  1. It's common for people with Parkinson's Disease to develop dementia. Here's a recent article from the site that you may find helpful - https://parkinsonsdisease.net/caregiver/managing-dementia April - ParkinsonsDisease.net Team

    1. Hi. My dad (whom I live with) has pd and dementia. It makes it especially tough as a carer. I know sometimes my mum struggles with the day to day.

      1. Wow , that can't be easy for you or your mother. How are you both doing? - Jada (ParkinsonsDisease.net team member)

    2. Hello to those on this thread talking about PD and dementia. My 86 yr. old father with PD and dementia for about two years now presents different symptoms more often now. It helped immensely for my mother (his primary caregiver) and I to talk to a social worker at my father's neurology office. She helped put in perspective what my dad is going thru so we can understand as care partners. It also helped my mother learn what she needs to know/have some tools in her caring tool box for when and if events happen. She also has access to a virtual care group for support too. Best wishes to you all as you continue to be the heroes in the lives of those with PD and dementia. It's not an easy road but if you surround yourself with loving friends and family and providers it makes it not so bad. Take care, Suzanne T., Advocate, ParkinsonsDisease.net

      1. hello : my dad had PD and dementia. I had the great fortune to spend time with my dad while he was still around and responsive to some degree. He has passed some time ago, but my memory of him is still strong.
        I owe this to my mom. She was an RN for over 60 years and the last 30 of those years she was the evening supervisor of a nursing home. She knew how to care for the elderly under just about every situation and she taught me as no book or school could. It was up close and personal. “Hands on”.


        What was the takeaway? Patience, understanding, persistence, and self- reflection.
        Find someone, if you can, to help you understand the many layers of these diseases and figure out what is possible and what is practical in the case of caring and helping. If you can make the time and effort to make your wife as comfortable as she can be, the satisfaction comes, at some point, knowing you are doing your best to keep her safe and cared for.


        It’s something my mom taught me. Just keep your loved one safe and comfortable.

        1. Jeff, Thank you for your comment about the memories of your mom. I too worked in a skilled nursing home for over 25 years as a speech pathologist. I learned tremendous life lessons of dealing with the elderly and infirmed. There is no cookbook approach to taking care of our older generation. I agree that making those with PD comfortable, gives you the satisfaction that you are doing the very best for their care. Regards, Marc M., Moderator, ParkinsonsDisease.Net

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