Do you think this is PD (video)?...Action (more specifically isometric), not resting tremor. Triggered by various dexterity related movements of the effected pinky. Dystonia/tremor not interrupted by movement. Lasts for 45 seconds or so, then stops...Reactions0reactionsComments1 replies
What's Happening To Me...?...One weekend roughly a year ago we walked onto our boat on a Friday evening after a long drive from NJ to Lake Champlain. When I woke up early the...Reactions0reactionsComments3 comments
How to deal with night horrors...My husband constantly kicking and yelling out through the night. Clonazepam doesn't seem to do much...Reactions0reactionsComments1 replies
Quarantine-Style Shopping with Parkinson's...Like many of you, my wife and I do a lot of online shopping. This was and is especially true during this period of social distancing. Gone are the days...Reactions0reactionsComments0 comments
Where do I go from here?...I was living a happy life. I was considerably healthy (I’d lost over 170 pounds by walking every day and eating a healthy diet). That was until I began to...Reactions0reactionsComments3 comments
Fight or accept or both?...Finally diagnosed in July 2018. Got severely depressed, suicidal and all that fun stuff. Left an abusive marriage a few months before and left the state to live with my...Reactions0reactionsComments3 replies
Quotes on Hope, Positivity, Loving Others, and Living with Parkinson’s...The past few months have been both rewarding and difficult. These difficult times have changed all of us, directly or indirectly. For personal reasons, I have been writing quotes on...Reactions0reactionsComments2 comments
The Repo Man Called For You: His Name Was 'Mr Parkinson'...I’m sorry that I missed you. I’m sorry you were late, I’ll catch you when you’re next in view, Or just about to emigrate, Yes, I’m the promised man, I’m...Reactions0reactionsComments1 comments
Restarting My Self-Care During Quarantine...For the last few months, I have thought about all my fellow care partners often. I'm often wondering how caregivers are coping with these difficult times, being isolated, schedules turned...Reactions0reactionsComments0 comments
Six Tips for Managing Parkinson's "Off Time"...The medications developed to treat Parkinson’s disease (PD) can help manage the symptoms, including tremor or shaking, rigidity, impaired balance, and slowness of movement. However, many people with PD experience...Reactions0reactionsComments45 comments
Infographic: Pain Management Treatment and Care...In September of 2019, Health Union (the parent company of ParkinsonsDisease.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...Reactions0reactionsComments2 comments
Impulse control...Has anyone encountered someone who was never inappropriate before having Parkinson's disease for 10 years but has become obsessed with sexual thoughts and disturbing comments?...Reactions0reactionsComments7 replies
FDA Approves App to Personalize Parkinson’s Disease Therapy via Mobile Device...The U.S. Food and Drug Administration (FDA) has approved the use of Abbott’s Patient Controller app on personal Apple smartphone devices. The app is designed to coordinate therapies that use...Reactions0reactionsComments1 comments
I used to have Parkinson's disease now I don't...cant go into story at the moment But please please Get A Scan it is the only definitive way to Confirm diagnosis.I still have a tremor But its not caused...Reactions0reactionsComments16 replies
The New Era of Telehealth & Telemedicine Visits: Part 2...To read more about preparing for our telehealth visit with the neurologist, read part one of this article series. The medical office sent an email to Karl with a Zoom...Reactions0reactionsComments5 comments
Dealing with Tremors: Using Meds, Moves, & Humor to Cope...My guess is that most of you reading this know how fictional character James Bond likes his martini prepared. The phrase, “shaken, not stirred,” is as familiar as the way...Reactions0reactionsComments21 comments
Emotional drain...Hello, I joined today because I feel quite lost and very guilty. My mom was diagnosed with PD 10 years ago. (she is 72 now) She also had 2 spinal...Reactions0reactionsComments4 repliesCaregivers & Care Partners
Any voice treatment or ideas to communicate?...My dad has had Parkinson's for many years. In the last 1-2 years, it's left him unable to walk. Now in the last 3-6 months, his voice is nearly gone...Reactions0reactionsComments3 replies
Urinary Incontinence in People with Parkinson’s Disease: Part 1...“Incontinence Hotline...Can you please hold?" Lately, I have seen television ads for bladder control medications that are proudly showing some woman roaming around with a nagging bladder always bugging her...Reactions0reactionsComments4 comments
Call Me Mr. Parkinson: The Naked Truth, Nothing Else...The real, underlying problem Parkinson's folk have is that they comprehend there is no cure for this monstrous, unassailable and undignified infliction, yet no one - or very few people...Reactions0reactionsComments6 comments
