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How do you deal with involuntary movement above the waist?

My dyskinesia consists of my upper body swaying back and forth, my head moving around, and my hands in fairly constant motion. This can continue for half an hour or more. I’m not embarrassed by it because it means I’m not frozen which is much worse in my opinion. Do other people experience this?


Community Answers
  • Jessica.Hall moderator
    2 months ago

    Hi @photeinel, we appreciate you reaching out to the community. While we wait on others to weigh in with their experiences, I thought I would share a link to articles we have that speak to dyskinesia https://parkinsonsdisease.net/?s=dyskinesia. Hope this is helpful! Wishing you well. Kindly, Jessica- ParkinsonsDisease.net Team

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