The Duality of Illness: Terms We Should KnowWhen it comes to trying to explain how we feel on a particular day, it can be difficult to articulate in a way for someone without our exact illness (in...reactions16comments
Thanks for the Memories, Ricketts GlenRecently, I set out on a pilgrimage to spend an afternoon figuring my Parkie self out. Not as emotional or spiritual as a "vision quest”, but I would still be...reactions2comments
7 Triggers That May Heighten Your Parkinson’s SymptomsGetting a handle on what activates or triggers Parkinson's symptoms can be a mystery. However, the longer you’ve had the illness and the closer you pay attention to your circumstances...reactions6comments
For the Worriers: Moving from “What If?” to “What Now?”A few weeks ago, I met Dale. Similar to many people recently diagnosed with Parkinson’s disease, Dale struggles with worry; sometimes, mightily. Still in his 40s, he worries about rapid...reactions9comments
Don't Cry For Me...I’ve just started a new job, well sort of job. It’s a 9 month business builder programme, creating a company which solves the challenges faced by older adults. I’m incredibly...reactions4comments
Searching for Silver Linings: How to Stay Positive with Parkinson'sSince I was diagnosed I have tried to stay positive. It’s often tough to see the good in difficult situations but I really believe it’s got me through the last...reactions48comments
A Round Character in My Own Parkinson's StoryWay back when (1997), my English professor explained how all good stories were journeys to somewhere. Sometimes, they were physical, while other times they were internal. At that time, I...reactions2comments
Facing the Reality of the Parkinson's DiagnosisIt took about two years for my physicians to sort through the array of maladies I had before ultimately reaching the decision it was Parkinson's. In hindsight, it was a...reactions6comments
Speak Up for Yourself: A Website for Your Voice“How are you? No, for once, I’m not here to tell you how I am. How are you?” I talk about myself a lot, but that tends to be the...reactions3comments
Who Will Advise Us When Parkinson's Hits?Getting diagnosed with Parkinson’s is a devastating moment to Parkies and those who know them. The emotions that surrounds the newly-defined term are likely to bring tears, shock, anger, denial...reactions4comments
A Surprising Reason to See the Dentist: Oral Hygiene & Parkinson'sPeople with Parkinson’s disease, especially in later stages, can experience a wide array of oral hygiene issues. These symptoms may make it really hard for someone with PD to keep...reactions7comments
Denial Ain't Just A River In EgyptPrior to my diagnosis of Parkinson's disease at age 32, I was a pretty active chick. I loved a challenge. I had heard about CrossFit training, which is an extreme form of...reactions3comments
Re-Thinking Images of Parkinson’s DiseaseWhat images of Parkinson’s disease do you carry? You know, mental pictures or visual impressions. Which words or phrases or objects, when you hear them mentioned, suggest a Parkinson’s likeness?...reactions6comments
Rescue Call Blues: Help!There comes a point in every person’s life where he or she realizes that it’s impossible to be tough all the time. It’s at that point that we need someone...reactions4comments
Stealing Self-Worth: PD and Mental HealthParkinson’s disease (PD) is a thief. I did not understand this when I was younger. Now, after losing two loved ones to PD, I do. Shortly after my vibrant, sociable...reactions3comments
Loving Lists, But Not Loving Executive Dysfunction in Parkinson'sI love lists! Maybe, I love too much! My other problem with lists is that I generate too many important lists of my priorities and those ‘must do’s’ get confusing...reactions7comments
A Checklist for Supporting Someone with Parkinson’sLately, I have met people who know someone with Parkinson’s. However, the messages they have delivered to me are somewhat distressful, not hopeful: "I have a friend with Parkinson’s, and...reactions11comments
The Language of Parkinson's: Understanding Parkinson's TerminologyBefore my diagnosis, I knew next to nothing about Parkinson's disease (PD). I soon discovered that PD has its own language. Some of the terms I was soon to become...reactions1comment
Marijuana Use in People with Parkinson'sAs my family and I make the three-hour drive home after a long weekend in the Texas Hill country, my 13-year-old daughter, Meredith, asks the question: “Dad, did you know...reactionscomments
Beth Hochstein: From Dancer to Dance Instructor to Dancing Fundraiser for PDI recently started researching how dance can be a great exercise option for people with Parkinson's disease (PD). Over and over, Beth Hochstein's name kept coming up in the Google...reactions1comment