I've had it with the medical community.
I've gone from active and self sufficient to walking with great difficulty, shuffling and unstable in a matter of less than three months. I went back to my neurosurgeon, I've has a lumbar fusion and a cervical fusion I the last two years with good results. He did MRIs and x-rays and says it's nothing surgical. He referred me to a neurologist that can't see me for two months. My symptoms get worse every day. My word don't always come out right, my right arm doesn't swing when I walk and the last few days my hands don't work as well as they use to. And yet, with multiple phone calls and a visit to the ER, no one seems too concerned about getting some help for me. Maybe when I fall and break a hip, I'll get someone's attention. I'm completely disgusted and disillusioned with the medical community in my area. I've made calls to be seen elsewhere in the state. I haven't gotten any calls back. So I guess I just have to suck it up until someone has time to see.
I can understand your frustration in not being able to be seen in a timely fashion. This seems to be the case in many areas. In the interim does your neurologist work with a Nurse Practitioner? They can often do a basic evaluation to get the process underway. Wishing you all the best. Thea DeStephano Community Team Member I understand your frustration. I had to wait for several months to see a neurologist at UTSouthweastern. Then he referred me to a movement specialist. I had to wait 6 months to see him. It was worth the wait though. Try to hang in there. Good luck. 
I can only imagine how frustrating it is to wait, especially with the physical changes you describe. I am glad to read that your neurosurgeon did what he could. I don’t know if you can exercise in water, or try yoga or some type of exercise while you wait on the appointment with the neurologist. I wonder if some stress management techniques might help deal with how you feel now. I also wonder if you could call weekly to check on any appointment cancellations by other patients so you could be fit in early. Don’t give up. Lorraine, parkinsonsdisease.net moderator 
Hello, I'm sorry that you are experiencing these symptoms and difficulty with getting some more help from your medical community. The other contributors on our team gave you some great suggestions already. One more thought: does your neurology team utilize an online messaging system like MyChart? If so, I have found this the most direct way to reach my father's neurologist or nurse- often they can check messages between patients to respond to questions that you might have in-between in person visits. You might also see if they have a social worker on staff who can also be a wealth of knowledge for resources for therapies to help you feel better and stronger while you wait on those appointments! (: My mother and I met several times with a social worker on Zoom meetings who was very helpful to our family and assisting my father with his PD.
Let us know how you are doing! All the best, Suzanne Troy, ParkinsonsDisease.net team member
