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Have any of you with YOPD asked your doctor for a worst case scenario?

If so, what did the doctor say.

Community Answers
  • Dan Glass moderator
    2 weeks ago

    My doctor was up front with me about where things could go, but nothing is guaranteed, especially timelines. Nevertheless, I do feel like Parkinson’s takes its turns against my resistance. It’s not all the time, but it happens. I’m in stage 2, 3 years out of diagnosis, 8 years with symptoms and my right foot is reaching out for dystonia. My left foot is 5.5 years in that game. I can’t always tell what’s seasonal excess and what will pull back with spring. That said, I personally try to avoid the worst, but I’ve looked at stage 5 symptoms, which would be the worst case.

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