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Does anyone experience dystonia?

I am having problems with my legs and arms jerking and spasms periodically. Dr said was dystonia. Can anyone relate to this and how did you get relief?

Community Answers
  • Karl R moderator
    2 years ago

    Hi Eunice, sometimes involuntary movement (dyskinesia) can be triggered by side-effects of our medications (I am not a doctor). Depending upon the medications that you are taking, you and your neurologist might discuss if your medication is the cause. I find keeping a journal and sharing it with your doctors is helpful to see if you can identify a pattern. This is not medical advice, it is just what has worked for me. Best of luck- Community Team Member

  • KellyW moderator
    2 years ago

    Hi Eunice. Thanks for your question. Restless leg syndrome can be very common in people with Parkinson’s. Please talk to your doctor about diagnosis and treatment options. Here is some additional information:

    Regards, Kelly, Team Member

  • Courage
    2 years ago

    I experience both dystonia and myoclonus and what you are describing sounds more like myoclonus. Secondary myoclonus is a symptom of some neurological disorders such as PD. An arm or leg or even the whole body can “jump” or jerk. Healthy people can have myoclonus like right before they fall asleep they may jerk or even hiccups are a form of myoclonus.

  • Chris H. moderator
    2 years ago

    Thanks so much for submitting this question, Eunice! This sounds like a really difficult symptom to manage. While we wait for others to chime in, I thought I’d share an article with you about dystonia: This article does mention some treatment options, but we always recommend that you speak with your doctor before starting any new treatments. I hope this helps! – Chris, Team Member

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