YOPD diagnosis questions
In September of 2018, at age 32, I began taking Sinemet following a YOPD diagnosis and concurrent diagnoses of a torn labrum in my shoulder and cubital tunnel syndrome. I’m a professional pianist so this nerve issues aren’t terribly surprising. My diagnosis was supposedly confirmed via DaTscan even though I was on a fairly high dose of setraline which I never stopped. So as I began medication I also began extensive PT and cortisone injections for the other issues. All my symptoms eventually went away. Fast forward, I began to have more shoulder and hand issues in the past year or so which ultimately resulted in shoulder surgery. Before surgery I felt like I was having some dyskinesia after each dose of Sinemet. After surgery I realized my pain was much worse after taking the PD meds. Over about three weeks, I tapered my doses down and have been off PD meds for two days as of now. I feel much better, don’t notice my PD symptoms at all, and the dyskinesia is gone. My question is shouldn’t I feel something at least by now? I was told I had to have PD because of the DaTscan but I’ve since discovered that sertraline can interfere with the test. Additionally I discovered that interference can be asymmetrical 20% of the time. What would you do? Try a new MDS? This would be the third. I’m very conflicted as I don’t want to start back on meds if I feel better! Thanks!
To clarify, my symptoms were rigidity in my left arm and kinetic tremor. Never resting tremor.
Bif My symptoms are much different than yours. At 64 mostly I shuffle when walking and I have bathroom issues. I have been on Sinemet for 10 months now as prescribed by my trusted Movement Disorder Specialist. Whatever Tremors are tough especially
for a Pianist. This disease is so very complicated and it is hard to follow instructions particularly when they don’t seem to work. I believe in Trusting the science. But there is clearly some benefit in listening to your body. Good luck, blessings Mike
