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What's Your Most Difficult Unseen Symptom of Parkinson's?

  1. Muscle pain is the most draining. Constipation the most frustrating. Dystonia the most debilitating.

    1. Oh and fatigue the most depressing.

    2. Ugh, Courage! Those symptoms do sound really tough. Do you have ways any effective ways of how you manage these different symptoms? We’d love to hear more about it. Thanks so much for answering our Q&A! – Chris, ParkinsonsDisease.net Team Member

  2. Ugh, Courage! Those symptoms do sound really tough. Do you have ways any effective ways of how you manage these different symptoms? We'd love to hear more about it. Thanks so much for answering our Q&A! - Chris, ParkinsonsDisease.net Team Member

    1. Fatigue, sore arms, inconsistent sleep. A couple things that are not invisible but no one notices is both my arms don't swing when I walk and my walking pace is a lot slower with my left foot dragging on the ground. I just shake my head in disbelief sometimes when I might have a day where my tremors are mild so people will say oh I guess your Parkinson's disease is good today because you aren't shaking like normal. Meanwhile my arms are thriving with pain or soreness and I am having a hard time trying to talk and hold my head up among other things. As much as I try to educate people they just don't seem to be listening. I guess they are to involved in there own lives.

      1. That's such a shame that people aren't listening, Gabro13! I wish people were more understanding about the underlying symptoms of Parkinson's. Thanks for taking the time to comment. - Chris, ParkinsonsDisease.net Team Member

      2. I just came across your comment on your most difficult unseen symptoms of PD, gabro13, and it sounds very difficult to deal with day to day activities. You may have already considered speaking to your Movement Disorder Neurologist for a recommendation to see a speech and physical therapist to personally assess your situation. Thank you for your comment. Marc M., Moderator, ParkinsonsDisease.Net

    2. Hi everyone. My muscle aches are helped by stretching multiple times a day. I use a whole body vibration machine and when my shoulders feel like I'm carrying them up around my ears I'll use a tens massage unit.
      For the constipation, I take stool softeners daily (to much information???HAha.) I think those of us with PD get a pass on the warning about not taking them to frequently. At least I have my doctor's blessing to do so.
      My toe curling and foot cramping (dystonia) responds well to c/l during the day. Toe curling is my cue that my dose is wearing off so I can take another before I'm stranded somewhere unable to walk. The nighttime dystonia in my legs is a whole other story. I deal with it by elbowing my husband saying "legs" and that's his cue to jump up out of a dead sleep and get me magnesium and tonic water. While he's doing his part I lie there with a death grip on my calves doing Lamaze breathing. Haha. Well maybe not exactly like Lamaze but very close. 😀 Much more affective than drowning in a pool of tears cursing.
      Gabro-have you tried CBD oil for your pain and soreness? It's worth a try.

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