How do i cope up living all ALONE
I live alone with my pet dog
I was diagnoized 7 to 8 years back with YOPD 41 YRS OLD and Iam from India
I have awesomely been dealing with my PD so far mentally but its getting difficult to deal with the physical aspect of it as I'm slowly progressing n i know and accept that as well, my fear of ending up on the wheel chair in fact motivates me to fight it back
but my recent falls have given me more stress and worry ....i feel my Pd is taking. over me and maybe i would not be able to manage all alone, am getting clueless and lōst
i am not able to exercise due to fear of falling g ag again but my passion for sketches makes me feel a little better
Any suggestions will be appreciated and welcome
Hi Sapna,
I'm sorry that PD is getting the best of you physically. We have many people here at our site that are PyP (Persons with Parkinsons) especially like you who are YOPD. We feel your pain and share in the frustrations that come along with this crazy disease. Finding the right tools to deal with your symptoms helps immensely and finding the right team members to help you along the way. We are here to support you. Please take a look at this article from our site that might help you give you some initial tips:
https://parkinsonsdisease.net/young-onset-parkinsons-disease
Again, we are here to support you. I myself have a father with PD and now dementia. (Age 86). I help my mom to take care of him. Let us know how you are doing and if there is anything else we can help you with. If you use the search function on our website you will find many other helpful articles written by PyP.
Blessings, Suzanne Troy, Moderator, ParkinsonsDisease.net
Sapna, living alone can be frightening and cause additional stress. Your local Council for the Aging may be able to give you suggestions on how to cope with being alone and planning for the future.
There are some excellent exercises to improve balance and minimize the risk of falling available on line.Most of these exercises have seated options.I frequently access the davisphinneyfoudation.org site which offers a wide variety of videos which help me avoid becoming bored.Google free exercises for seniors and hopefully you will find some videos that suit your needs.Please let me know if I can be of any additional help and let us know how you are coping.
Sapna,
I suggest you talk to your Neurologist as quickly as possible. Have you found a Movement Disorder Specialist? They can be extraordinarily helpful. The truth is your problems sound beyond human understanding. I know you can seek your Higher Power to lean on. He is always there and listening. This condition is miserable but you can get ahead of it. I am praying for you, Blessings,
Mike
T
TQ MIKE ,,,,,I HAVE BEEN TO THE doctor he just says one line
DBS SURGERY .. AND OUR GOVERNMENT DONT PROVIDE INSURANCE FOR PD
Thank you so much for the replies I'm glad I am a part of this community , i will certainly try all the suggestions
cheers
SapnaSapna, I just discovered a site you may find helpful for exercises to improve balance and minimize the risk of falling,Parkinson’s Place has several videos available at all fitness levels. I just did the Gentle Yoga class and found it so relaxing and still got a good stretch and felt steadier than usual. I plan on trying a few other classes as well.Please let me know if you give some of them a try. Take care of yourself
Thea
