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New to Parkinson’s

  • By Bridget5

    I was diagnosed with Parkinson’s disease in August 2018 and trying to stay positive and trying to adjust to life exercise daily and tired alot having a hard time sleeping and feeling alone

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  • By eurekadan Moderator

    First and foremost, I would like to welcome you to this site. I’m glad you chose to come here for advice, support, and community. This goes a long way to making us feel better about this situation. I also agree that coming here to this site will help you find like minds who have also felt what you’re feeling.

    Being positive can be hard; however, the exercise can help with that. Know that there are many communities in non-Internet society where you can meet “in the flesh” others to discuss strategies with. Your doctor might be able to help with those.

    Sleep is not easy with Parkinson’s. From weird dreams and sleep actions to not feeling rested, our new life can be challenging. This website provides a good bit of material on that and other issues you will face. Exploring it can be good, but don’t overdo it.

    I’m not sure what stage you’re in (I’m in 2), but I try not to go further than what’s now and next. The big scary potential future is just that – potential. Parkinson’s advances, but it’s not at a set rate. Also, some of that stuff really is scary. I know there have been potential outcomes that scared me. Remember that it’s OK to admit you need help.

    I like to say that the path is “be tough while you can” > get hugs for support > ask for guidance > ask for some help > I need you to do this for me. This is something I believe in all aspects of life. We know what stage we’re at. For example, my wife now cuts my finger nails. My wife hugs me when I’m feeling down. My parents offer to help out and mow (though I still do that). Other friends and coworkers give me positive encouragement. I hope you find a group that can help you.

    The best you can do is to be yourself, stay active, see your doctor, take your meds, and to enjoy life with the people who matter to you. I know that’s easier said than done, but by doing the things you love that you’re still able to, it will take your mind off of Parkinson’s – at least some of the time. You might even look into new hobbies (for example, I replaced some hiking with seeing musicals with my wife – her interest and now mine).

    In the meantime, know that my team and I are here with thoughts, support, and encouragement. Also, thanks for taking the time to tell us how you feel. I wish you the best in life.

    Please let me know if I can help with anything.

    Dan parkinsonsdisease.net team / moderator.

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