caret icon Back to all discussions

New Neurologist Doesn't Think I Have Parkinson's After 16 Years

My fear it is going to begin again...I've had at least six Neurologist over the years think I'm doing to good and a couple have cut my meds. I would then start freezing and/or falling until they increased my meds again. My wife is worried I will start freezing/falling because I can not stand up from the kneeled position without help or something to grab onto anymore. I was in the hospital a couple years ago for 2 days and the nurse refused to give me my Carbidopa/Levodopa when I asked for it. The RX had different times so it took me almost 2 weeks to get back to normal. He didn't look at my past records till he got in the office and made a comment it was a book. I just don't get a good vibe from him but we'll see. Below is his assessment. Sorry for the rambling on.

Unusual presentation. Currently there really are no findings on his examination to support diagnosis of Parkinson's disease. However he is taking medication that could diminish the physical findings, although it is unlikely that he would completely eliminate such findings. Most patients that have had Parkinson's disease for 16 years would probably have some exam findings, even on medication. With his unusual psychological symptoms, one wonders if he could have instead a multiple system atrophy with some mild extraparametal features and some frontal lobe type cognitive dysfunction. For now, we will leave him on his current medication regimen and will see him in 6 months time. Neurologic examination today is fairly unremarkable except for some mild cognitive impairment. Perhaps neuropsychological testing in the future may shed some light in his cognitive issues.

2. Mild cognitive impairment

Alert and oriented to person and location. He gives the correct day of the week. He states over that is September 2019 instead of October. He knows these on the second floor. Current events are normal.

On short-term recall he recalls 0 out of 3 objects after 5 minutes. This does not improve with clues. This improved to 2 out of 3 with choices.

Does not meet current criteria for diagnosis of dementia at this time. We will continue to monitor his cognitive function.

  1. Movement disorder dr. will help you.Many neurologists may not deal with pd very much.I finally went to one and things improved,meds got adjusted and it really helped.

    Please read our rules before posting.