Spun Out of Control On Rytary and Shortage of Neuropsychiatrist is a Dangerous DevelopmentIn Boston, MA and I believe nationwide, we have a huge shortage of neuropsych pharmacologists and psychiatrists seeing Parkinson’s Disease patients. I am not getting the quality of care I...Reactions0reactionsComments16 comments
Never Woulda GuessedI am 64 and just retired from teaching second grade. Whew! I was diagnosed with PD about 5 years ago although I had symptoms a few years before. I went...Reactions0reactionsComments4 comments
I try to be patient!I'm a slow learner. It upsets me that my husband has delusions about me having sex when I was 12. One medication he tried was bad for his heart. He...Reactions0reactionsComments1 comments
I bore myselfAfter 5 long years, single and alone with a bad dog, I would think that I was adapting. I am in ways that are important as a good person. I...Reactions0reactionsComments5 comments
Glad Ta Meet Cha!I was officially diagnosed with PD in 2015, but now recognize that symptoms were occurring as early as 1983--I just didn't know the odd body changes I noticed were indications...Reactions0reactionsComments1 comments
Sister5 is because I am the 5th sister of 9I come from a family of 11, 9 girls. I am the only one with PD. My name is Denise and I was diagnosed with PD 3 years ago. I...Reactions0reactionsComments1 comments
Preininger's StoryMy husband was diagnosed with PD a couple of years ago, to complicate matters he is an amputee, right leg, and his roto cuffs are severely damaged and not operable!...Reactions0reactionsComments1 comments
The WarI am at war. I am at war with an enemy that doesn't fight fair and wants to win no matter the costs. This enemy has many weapons at his...Reactions0reactionsComments3 comments
First Day of PTLast Friday was my first day of formal PT (physical therapy). Since I lived too far from the nearest VA facility that offered this service, the VA gave me the...Reactions0reactionsComments4 comments
13 Years of SupportBonnie is my name, but I melt when called Granny B' by my Grandchildren. Status: Diagnosed at 46, July 2005 with Young Onset Parkinson's. Nearly thirteen years of tapping my...Reactions0reactionsComments3 comments
Debbie's StoryHi my name is Debbie I'm 64 years old married and have a daughter 28 years old and was diagnosed with Parkinson's a little over two years ago. I have...Reactions0reactionsComments1 comments
David’s StoryI was first diagnosed just about a year ago after my cardiologist noticed that I was dragging my left foot when I walked and that I had a slight hand...Reactions0reactionsComments7 comments
Christi's StoryI was at my first pain doctor visit. He came in and asked if I had PD cause I had the mask. I asked my neurologist and he said no...Reactions0reactionsComments3 comments
Newly DiagnosedDiagnosed last October after almost a year of many, many specialists telling me they had no idea what was wrong. My symptoms were all non-motor, insomnia, leg pain that will...Reactions0reactionsComments6 comments
Bring Me My U-StepMy husband is currently in inpatient rehab after being in the hospital for respiratory distress. While in the hospital, my husband had a light weight aluminum walker in his room...Reactions0reactionsComments2 comments
Fluffy and FatboySix or seven years ago when my husband was no longer able to drive, we began looking for a part time caregiver. That is when we found Reggie. My husband...Reactions0reactionsComments4 comments
Financial Assistance for PD MedicineMy husband was prescribed Rytary a few months ago. When our Movement Disorder Specialist told us about this drug, I asked if it were available as a generic. He told...Reactions0reactionsComments1 comments
Speak UpMy husband is 72 and has been living with Parkinson’s for 25 years. The general medical community knows so little about PD. We have seen many new drugs and treatments...Reactions0reactionsComments1 comments
My New RealityThis is the story of an umpire who loved his job. He had worked many tournaments including a Big League Softball World Series. He’s worked Little League, ASA, USSSA, NSA...Reactions0reactionsComments4 comments
Agent Orange has effected my Quality of LifeI am Vietnam Disabled Veteran who didn't know I was until flash-backs began after 9-11. I had suffered from shaky hands since 1970 when I got my Honorable Discharge, but...Reactions0reactionsComments8 comments