Welcome to ParkinsonsDisease.net Stories

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At ParkinsonsDisease.net, we believe that we are stronger together than we are alone. Living with Parkinson's disease can be a challenge, but the more we share and support one another, the better off we will be. Whether it’s your own story of how you manage Parkinson's disease as well as manage complications, to tips on daily living, we want to hear from you!

So please submit your own personal story about Parkinson's disease, and check back often to read about the stories others in the community share. We hope these stories become a source of inspiration and support for our community.

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murcadden Member
How do I get to read stories? Beside each post is the word "stories" written in red, which would indicate to me that, if I click ed on it, I would be taken to that indiviual's story.but i am not; so, I then click on the underlined name - no luck there. either. The obvious firstt lines of some of them look very interesting. Could you help me?
1. April.Sluder Member
 Hi <inline-mention user-id="3087845" username="murcadden"/> , you can click on the title of the story to be taken to the full story to read. Let us know if you have any difficulty. Thanks! April - <a href='https://parkinsonsdisease.net' target='_blank'>ParkinsonsDisease.net</a> Team
jmccroskey Member
How do I get past the feeling of guilt at having my husband have to do for me. He says he doesn't mind but I feel like I'm robbing him of his life. We went on vacation to a beach location, and I couldn't walk, swim, everything I ate made my stomach upset, I was afraid of the shower, heck I felt like I was in the twilight zone. Most of the time I was in a wheelchair because of the excruciating pain I have in my left foot. I cry when I see how I'll always be dependent on my husband.😢
1. Suzanne Troy Member
 Hello <inline-mention username="jmccroskey" user-id="3073675"/>, I'm sorry that you are feeling guilty about being dependent on your husband. As a care partner to my father who has PD and dementia, I have helped my mother navigate his caregiving over the years. What helped in our family was consulting with a social worker at my father's neurology office. They are wonderful to help my mother understand what my dad feels like as PwP and then my mother would get support with being dad's primary caregiver/partner. Talking to someone who understands Parkinson's will help you and your husband talk about your daily world you live in, help sort out your feelings and give you resources too! Maybe also, finding a vacation that is wheel chair friendly for both of you to enjoy! Please let us know if this is helpful. All the best, Suzanne Troy, <a href='https://parkinsonsdisease.net' target='_blank'>ParkinsonsDisease.net</a> Team Member
jmccroskey Member
Thank you